
Ticked off about Lyme Community Group
A place for Lymies to get together to talk about things other than Lyme.

standstrong
Can't get away from this feeling I call Raging Against the Lyme. I am so filled with resentment over what I have lost and what I am hanging onto by a thread. I am so angry everytime a new symptom shows up. Today I noticed a bruise in the cuticle of my fingernail. Great. This isn't even about fear, although I have plenty of that don't get me wrong but what's the point really? This is about just wanting to beat the shit out of Lyme but not being able to touch it.... just when I think I have a grip on it, my symptoms are reducing, and my energy is returning I get pounded so hard... and my grip is lost...like a wet bar of soap it just is gone before I know what is happening. So much anger. What else makes me angry? I'm angry b/c doctor's are so stubborn and so "owned" by insurance companies, who are so "owned" by the CDC, who is so "owned" by the IDSA. In my search for a neuro I put out an email to every Lyme support group within 150 miles of me.... in the process I didn't find a lyme neuro, but I did find a person who is working on putting together cases to be presented to the IDSA (I think... not reallly sure yet but something to that effect... some kind of advocacy effort on OUR behalf)... she asked me if I would participate. I told her of course I would because maybe some of my anger can be used to chink the armor of the mighty giant... and maybe enough chinks in the armor will weaken it's power over us all. Do you think we can EVER get the IDSA or the CDC to cry UNCLE? I don't, but I have to do something constructive with my rage. So, that is the end of my rant for now. I have to go take all of the midday pills I forgot to take yesterday and try to find something for lunch. Yup.... I am REALLY TICKED OFF about LYME!
Posts You May Be Interested In
-
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
-
Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...
I'm glad you are still popping in to DS.... you will find the support you need, but I know it's just one more thing to you somedays. So, do only what you can... do only what you feel like. We'll still be here when you get back. hugs to you... Donna
When I first joined this site, I remember reading posts from you that sounded like you'd been so beat up, almost defeated.
Since then, that defeated feeling seems to have turned to anger. I have a tendency that when I hit bottom, I feel defeated; and more importantly, when I'm bouncing back, I begin to get really pissed off. Then I find a way to convert that anger into action.
I hope that's what I'm hearing in this post!! I think it is, and if so, I'm so glad to see it! It can really be the turning of a corner to go from defeated, to fighting mad.
Go get 'em Ladies!!!!!