Thyroid Cancer Support Group

Thyroid cancer is cancer of the thyroid gland. There are four forms: papillary, follicular, medullary and anaplastic. If you or anyone you know and love is affected by thyroid cancer, join this community to lean on the support and experiences of others.

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After PET scans...

deleted_user
deleted_user
I have had 3 surgeries to remove a tumor and inflamed lymphnodes. After the first and second surgs. I have had PET scans, showing I had nothing, no tumors or unhappy lymphnodes. It was only after the thyroids scans, that stuff showed up. It made me think that after being free of tumors (so to speak), it was strange that I grew new ones in a matter of weeks. After the second surgery, I had a thyroid scan (that showed nothing), a PET scan (that showed nothing), and then a thyroid scan that showed more hot spots (or whatever you would call them on a thyroid scan). I'll get to the point: I think the radioactive contrast used in the PET scan is making my lymphnodes go crazy.... Has anyone else had this happen? Or is it just me? Or is my brain frying and I'm just misreading a different symtom of my Pap-Carc?
deleted_user
deleted_user
I really think you are young and not a text book case. You're very strong. hang in there!!! BIG HUGS!!!
deleted_user
deleted_user
My surgeon and Radiologist have told me that if the cancer can be seen on a pet scan it is not likely to be seen on an uptake scan and vica versa. Apparently PET scans use sugar but thyroid normally does not digest sugar it digest Iodine. In a way your lucky as long as your cancer keeps eating Iodine it can be treated with RAI. Once the cancer changes to eat sugar RAI is not as affective. I think what you are seeing is normal I just do not understand why they are doing the PET Scans.

I am not clear on all of this because in my recent round of treatment it was 1st seen on PET scan on the left side of the neck only. Now after a round of RAI they have found it on uptake on both sides of the neck, in the Thyroid bed and in my chest. I am waiting to see what they want to do next.

Good Luck.
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