My 16 year old daughter was just diagnosised with SM. Her NS is setting her up for a 2nd opinion at Riley children's hospital in Indy. What does she have to look forward too? Life long pain? Wheelchair? Currently her pain is in the shoulders and arms. The NS nurse told me that paralysis is highly unlikely but from what I'm reading will she have a normal life? I have been trying to be positive in the fact the NS said it is not cancer and it is not life threatening. But what is going to happen to her??????
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