Syringomyelia Support Group
Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.
My 16 year old daughter was just diagnosised with SM. Her NS is setting her up for a 2nd opinion at Riley children's hospital in Indy. What does she have to look forward too? Life long pain? Wheelchair? Currently her pain is in the shoulders and arms. The NS nurse told me that paralysis is highly unlikely but from what I'm reading will she have a normal life? I have been trying to be positive in the fact the NS said it is not cancer and it is not life threatening. But what is going to happen to her??????
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
if the SM doesn't spread. that is one thing you should not do and that is worry about it spreading because there nothing you can do about it. just kope with it as it comes. if you get a good doctor who knows what he is doing, your daughter will be ok.