Syringomyelia Support Group

Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.

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possible discharge due to Syringomylia

I was just recently diagnosed with Syringomylia and have been notified I am on the medical board. Anyone have an idea what my chances are on being discharged?

Replies

beck2
beck2

Hi brizz184,

I'm sorry, I'm not quite sure what you mean. Are you in the military and they want to discharge you due to your syrinx? I don't have any firsthand knowledge of anything to do with the military. Based soley on my own personal experience with syringomyelia, I would think that it is highly possible.

Those of us with SM are told to refrain from any kind of strenuous activity. A simple cough, sneeze, laugh, cry, yelling, bowel movements, singing, etc., can send you reeling into unfathomable pain at any given time of any given day. When you are in a "flare", it becomes hard to face the day. You are in so much pain, for such a long time and nothing works for it, and you can't imagine how you are going to live out the rest of your life.

I would say that it is highly likely.

Good news, my neuro prescribed steroid infusions. They are helping a great deal with the pain. He usually just prescribes medrol dose pak's, but I was in such a horrible flare, it didn't do anything for me. I had the infusions, and about 3-4 weeks later I felt sooooooo much better. I'm actually able to partake in life again.

I just thought that I would mention this as a viable treatment option. It worked wonders for me. However, I do have an autoimmune disorder also, and the pain could have been coming from that as well.

Beck
beck2
beck2

Hi brizz184,

I'm sorry, I'm not quite sure what you mean. Are you in the military and they want to discharge you due to your syrinx? I don't have any firsthand knowledge of anything to do with the military. Based soley on my own personal experience with syringomyelia, I would think that it is highly possible.

Those of us with SM are told to refrain from any kind of strenuous activity. A simple cough, sneeze, laugh, cry, yelling, bowel movements, singing, etc., can send you reeling into unfathomable pain at any given time of any given day. When you are in a "flare", it becomes hard to face the day. You are in so much pain, for such a long time and nothing works for it, and you can't imagine how you are going to live out the rest of your life.

I would say that it is highly likely.

Good news, my neuro prescribed steroid infusions. They are helping a great deal with the pain. He usually just prescribes medrol dose pak's, but I was in such a horrible flare, it didn't do anything for me. I had the infusions, and about 3-4 weeks later I felt sooooooo much better. I'm actually able to partake in life again.

I just thought that I would mention this as a viable treatment option. It worked wonders for me. However, I do have an autoimmune disorder also, and the pain could have been coming from that as well.

Beck
beck2
beck2

Hi brizz184,

I'm sorry, I'm not quite sure what you mean. Are you in the military and they want to discharge you due to your syrinx? I don't have any firsthand knowledge of anything to do with the military. Based soley on my own personal experience with syringomyelia, I would think that it is highly possible.

Those of us with SM are told to refrain from any kind of strenuous activity. A simple cough, sneeze, laugh, cry, yelling, bowel movements, singing, etc., can send you reeling into unfathomable pain at any given time of any given day. When you are in a "flare", it becomes hard to face the day. You are in so much pain, for such a long time and nothing works for it, and you can't imagine how you are going to live out the rest of your life.

I would say that it is highly likely.

Good news, my neuro prescribed steroid infusions. They are helping a great deal with the pain. He usually just prescribes medrol dose pak's, but I was in such a horrible flare, it didn't do anything for me. I had the infusions, and about 3-4 weeks later I felt sooooooo much better. I'm actually able to partake in life again.

I just thought that I would mention this as a viable treatment option. It worked wonders for me. However, I do have an autoimmune disorder also, and the pain could have been coming from that as well.

Beck
deleted_user
deleted_user

Yes, sorry. I am in the military and was recently diagnosed with syringomylia . I'm not in complete pain all the time. Just a lot of pressure on my chest when I breathe where the syrinx is. I pretty much get a headache every day and like you said when I lift or do anything strenuous it flares up. I can deal with the discomfort all day until I start doing something strenuous . Thanks for the reply
deleted_user
deleted_user

Hi Brizz this can go both ways. If you are fit you can stay in or if your not you will get kicked out, just having it is good enough to get out but if you fight you can stay in. However you are lucky your in the military. You will get a minimum of a full 20 year retirement for this condition. This is directly from the DoD rating. SM is a minimum 30% rating. so you keep full benefits plus whatever they rate you. You will also get VA disability GI bill and all that good stuff. I did a full 20 year retire out of the army 13 weeks in service! they tried to say I had it proir to service but it was too late it was service aggravated. If you can still work you lose none of these benefits like you would with SSDI. your double income for life. I'm working on being a state police officer and I won't lose a dollar. However if you love your job in the military and want to stay in you can try but it's hard. I've only heard of pilots staying in just because the military invested a lot into them and it was worth working with them.

This is a quote from Dod

In some instances the VASRD provides a minimum rating without qualification as to residuals or impairment.
Syringomyelia, 8024, is an example. Diagnosis alone is sufficient to justify the minimum rating providing the condition
is unfitting. Higher ratings may be awarded in consonance with degree of severity. No rating lower than the minimum" may be used if the diagnosis is satisfactorily established.
deleted_user
deleted_user

Appreciate Ryan, well I def. plan on getting out and starting my life else where. I do not want to stay in and hopefully they just determine the severity of my case and determine what percent disability I will get. I am just trying to plan for my family to head back down to FL , but they make it hard because the process is so drawn out so far. I really appreciate your response. I have a heads up on kind of what's going to happen.
deleted_user
deleted_user

No problem and good luck. I was only an e3 when I got out and since I was 13 weeks in I took the 30% and ran but it sounds like you can get a higher one, on the VA side your looking at an easy 60% so you can apply for the 100 if it's too painful too work. If you have a family your all good. If you have a crazy ex wife VA disabilty can't be gaurnished lol goodluck sir and thank you for your service!
deleted_user
deleted_user

No problem and good luck. I was only an e3 when I got out and since I was 13 weeks in I took the 30% and ran but it sounds like you can get a higher one, on the VA side your looking at an easy 60% so you can apply for the 100 if it's too painful too work. If you have a family your all good. If you have a crazy ex wife VA disabilty can't be gaurnished lol goodluck sir and thank you for your service!
deleted_user
deleted_user

No problem and good luck. I was only an e3 when I got out and since I was 13 weeks in I took the 30% and ran but it sounds like you can get a higher one, on the VA side your looking at an easy 60% so you can apply for the 100 if it's too painful too work. If you have a family your all good. If you have a crazy ex wife VA disabilty can't be gaurnished lol goodluck sir and thank you for your service!
deleted_user
deleted_user

No problem and good luck. I was only an e3 when I got out and since I was 13 weeks in I took the 30% and ran but it sounds like you can get a higher one, on the VA side your looking at an easy 60% so you can apply for the 100 if it's too painful too work. If you have a family your all good. If you have a crazy ex wife VA disabilty can't be gaurnished lol goodluck sir and thank you for your service!
deleted_user
deleted_user

No problem and good luck. I was only an e3 when I got out and since I was 13 weeks in I took the 30% and ran but it sounds like you can get a higher one, on the VA side your looking at an easy 60% so you can apply for the 100 if it's too painful too work. If you have a family your all good. If you have a crazy ex wife VA disabilty can't be gaurnished lol goodluck sir and thank you for your service!
deleted_user
deleted_user

No problem and good luck. I was only an e3 when I got out and since I was 13 weeks in I took the 30% and ran but it sounds like you can get a higher one, on the VA side your looking at an easy 60% so you can apply for the 100 if it's too painful too work. If you have a family your all good. If you have a crazy ex wife VA disabilty can't be gaurnished lol goodluck sir and thank you for your service!
deleted_user
deleted_user

Yeah, I just made e-4 this past nov. but this syrinx sucks. I have a few serious sypmtoms but nothing that absolutely kills me ( yet). Shortened breathes, left arm numbness sometimes , mainly in the mornings and evenings, a headache almost every day and I'm only 27. A very active, weight room, bball, excersising kind of active. Anyways , ill put something up here as soon as I find out the outcome . Thanks again
deleted_user
deleted_user

I also am in the army and have the same problem. i am getting medically discharged. it depends on how much this condition effects you. the army is downsizing and are looking for ways to get people out. This condition affects me alot, my legs go numb sometimes, my back always hurts and i get shooting pain into my abdomen. i dont know how the doctors on and around your base are but in New York they are less than helpful.

My plan after medical discharge is to go to real doctors back home and get treated correctly. It also depends on your job position. you could reclass to a diff less stressful job but for me thats not what i want to do. So best of luck to you and whatever you choose
deleted_user
deleted_user

Dgunner, yeah the doctors on base here have never heard of it. The first nephrologist I went to , well actually I didn't even see him. He just reviewed my film from the MRI and kinda pushed me away saying it was not large enough to do surgery on and said "nothing we can do" and that was penn medicine in pa . So my plan is to def. get out of military and see a specialist too. Appreciate the input. They are putting my package together now for med board. I am a few steps along the way and Im getting a second opinion. Once I do that then the will continue the med board process. How far along are you?