Syringomyelia Support Group

Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.

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Brain & Nervous System
/ Syringomyelia Support Group

Has anyone else with syringomyelia had vision prob

deleted_user
deleted_user
I had a syrinx shunted in 2000, came out of surgery worse off then going in. In the last year i have had vision problems which were treated with solumedrul. Finally in Nov 07 they decided I have MS. I had been tested for it before but it never came back positive. Now I have to decide if I want/need to add more drugs to my already heavy dosage every day.
Monte
Monte
I don`t have any vision problems from the Syringomyelia nut it a neurological disorder so I would expect it to affect the eye`s also.I did have a shunt put in and the area in my c-spine that they did the surgery is stiff and hurts but that is because they had to cut the bones in half and it can cause problems.Please feel free to write me and let me know how you are doing let me know how thigs are going.I have just started going to a pain specalist and he has started giving me injections in my back and started me on Cymbalta for the neurologic pain,it did help a little but now the pain is back but not as bad as it was before.And I am still taking a muscle relaxer on top of that so don`t know how much is which one of the drugs is helping the most.I hope that you can find your answers and that I have helped even if it is just a little.
deleted_user
deleted_user
Hi Monte,
Thank you for your reply. You have quite a list of concerns. Made me feel like I didn't have much to be concerned about.However having lived with constant pain for 8 years I can sympathize with you somewhat. I hope you are finding some relief to your pain. LRV
deleted_user
deleted_user
I also experience vision problems and double vision.Sometimes i get trails that follow objects,but when i had my eyes checked they were 20/20.I have a syrinx from c/6 -t/2 and had a shunt placed in April 2010.I am having more symptoms now then i did before the surgery.I take Morphine,Percocet and Cymbalta for nerve pain and depression.Come on who wouldn't be depressed with this disease!! I just got my first Cine MRI done yesterday and am awaiting the results of that.My syrinx was 8mm wide so N.S said i had to get shunt or be in a wheelchair. Feel free to talk to me.And i hope i made you feel not so alone with the vision problems.
deleted_user
deleted_user
I too hav constantly blurred vision, i did not know that was a symptom of SM, then again i'm new here. Also my vision changes all the time and i am sensitive to bright light, i havent mentioned this to anyone being as i have so many other things to deal with right know.
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