This past month I have been to the rheumatologist as they thought I might have a connective tissue disorder, which alot of SM sufferers do. (Some of you may want to check that out as some people develop it in conjunction with the SM.) Checked out OK there. Got diagnosed with vitamin D deficiency though, so 50,000 units of vitamin D twice a week. Went to the neurologist because when I was at the neurosurgeons office my reflexes on my left side were almost gone. I had a good day while at the neurologist so my neurological exam went fine. He did an indepth blood work up, which came back fine, and I have to have an EMG on the 11th of November. He feels I may have some sort of muscular problem and that all my symptoms are not due to the SM. He is saying that the syrinx in my thorasic spine can not be causing the numbness, pain, and electrical shocks in my arms and hands, and that it is anatomicly impossible. Now everything I have read about SM says it primarily affects the limbs, so now I am completely baffled. lol. So in the meantime I get to be a pincushion, for those who don't know, they stick electrodes all down my leg and read the nerve impulses from that and then they are going to stick a ton of needles the size of straight pins into my leg and see how the nerves react to that :( This is not my idea of fun. And I go to see a pain management specialist a week from Monday. Boy, I thought my life was exciting before. I also will be starting pt with aqua therapy soon. I seem to be becoming more involved with the medical world than I ever wanted.
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