Support and Chronic Pain Community Group
Welcome! This room is for CP/IP survivors. This room promotes fun, family, support and compassion. No Drug Seeking Posts or Promoting of such activities are allowed here. Please, No "F" Bomb--keep swearing to a bare minimum. No posts that are "fighting" with another person/group on this board or another.
So today I went to my first official appt at the actual Pain Clinic here! What a freakn joke! After an hour of dealing with a doctor with a googly roaming eye asking me dumbass questions! He comes in and tells me that there is nothing they can do for me! Didn't believe that Im having these issues with oxycontin and said nothing changed about the formula to cause these problems!!! He said that the amount of meds I was on were too high to switch to anything else so there are no options for different treatment! WHAT? So, hmmm lets see, I apparently am lying that Im having all of these GI issues! Told me I would have to taper down off everything before they would even consider doing anything for me! That I needed to take a 90 day "opiate holiday"! And what lay in bed dying for 90 days in pain? WTF? Then he said that I should accept that there aren't many options for me either! So I guess Im supposed to just continue taking a med that made such sudden changes in my body when the formula changed! They tried saying that I have hypergelsia! I know what hypergelsia is and thats not what happening here! I may be on high doses of opiates but that doesn't mean I have to continue taking them until Im off of them before I can try something else! They acted like they weren't capable of helping me to do this and that they weren't a rehab!!!! Since when isn't it a PM drs responsibility to taper you off a med? Since when does a chronic pain patient have to go to another dr or specialist to taper back off of the med that they had no issue tapering me onto?
I can't believe this! If it was making my throat swell shut would they tell me to continue taking it until I could taper down off of it? Frick NO they wouldn't! It was like I sat there and talked to myself for an hour! I got highly upset and said "How often does someone come in and beg to be taken off of OXYCONTIN? What sense does that make?" They acted like I was there to add another med to the mix when in fact I would gladly gave them the stupid oxycontin if they would have given me something for the damn withdrawals!
I guess I'll have to do this on my own because Im clearly not going to get help from a frickn doctor! God I am so pissed off right now! I blew outta there in tears feeling like I have nothing to live for or no reason to try! Doctors don't give me any hope of feeling any better or any hope that they can do anything for me! Guess I'll just end up in emergency surgery from a total GI blockage.... maybe then they'll believe me when I say that this OP crap is causing me severe intestinal distress!
I give up!
ps- My blood pressure was 196/111!!!!! And the dr did nothing nor had an answer as to why or what I needed to do about it!
I can't believe this! If it was making my throat swell shut would they tell me to continue taking it until I could taper down off of it? Frick NO they wouldn't! It was like I sat there and talked to myself for an hour! I got highly upset and said "How often does someone come in and beg to be taken off of OXYCONTIN? What sense does that make?" They acted like I was there to add another med to the mix when in fact I would gladly gave them the stupid oxycontin if they would have given me something for the damn withdrawals!
I guess I'll have to do this on my own because Im clearly not going to get help from a frickn doctor! God I am so pissed off right now! I blew outta there in tears feeling like I have nothing to live for or no reason to try! Doctors don't give me any hope of feeling any better or any hope that they can do anything for me! Guess I'll just end up in emergency surgery from a total GI blockage.... maybe then they'll believe me when I say that this OP crap is causing me severe intestinal distress!
I give up!
ps- My blood pressure was 196/111!!!!! And the dr did nothing nor had an answer as to why or what I needed to do about it!
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Hiyesterday was nice, a day spent in the garden. i meant to get on here after tea time, but my sister came round.Here are some some pics from my garden. I love primrose to : )The camilia is not doing as good as the ones in the front garden. The flowers are on the side hence the side view.The rug i bought from amazon all the way from china turned up. I put it in my sewing/craft room. Remember the...
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good day all,maybe because i dreamed i was at work, i really thought it was monday. came to the living room and flipped my calendar to monday when i realized "hey! it's sunday. it's another relaxation day!" i truly had a day of rest yesterday. it was just one big nap broken up by short periods of being awake to socialize or eat. my body really needed it. then to bed around 8:30. i still don't...
It's the crappy patients that go into those clinics and get meds to sell/abuse that ruin it for the people who actually need them. It colors how these doctors see us! Why in the world would he just let you leave with a blood pressure that high!!
Gentle hugs to you. I hope you find a solution to help you get away from that med.
Don't these morons know that when your pain is out of control the BP shoots up???? That is common knowledge around the PM circuit, and I mean the real pain management Doctor's know this, I guess that these dumb arses don't went to that class in school huh? Maybe they were learning how to play golf so they could become "real Doctor's" once they graduated when that lesson was taught!
I am so sorry that you had to go through that............. now what? Any other PM Doc's that you can get referred to? Does your insurance require a referral, or can you pick one and go? I hope that you can go to someone else! It took me 6 visits, no I should say 5 because number 6 was the keeper! and we have been together for 4 years now. So Hun, keep on knocking on doors, keep trying PM's, if they don't seem insterested in helping, just thank them for their time and move on!!!!!!!
Hugs,
Call your local hospital and talk to the human resource person. Ask her/him for a list of P.M. doctors in the area. They always have this info.
I hope you get some answers soon. In the meantime my friend try real hard to relax and stay calm these things will help you in a big way.
Big Big gentle Hugs,
Toni
What a jackass that doctor is. They all aren't like that though. There are plenty of other options available for you but I would start with a combination stool softener like dulcolax and maybe a laxitive like miralax that you can buy over the counter if the problem is constipation. Oxycodone is notorious for causing the worst constipation in the world
I have tapered off oxycontin on my own twice before , due to wanting to see how my pain levels would be if I stopped all of the meds, so you can do it on your own if you need to, but whatever you do, do not , under any circumstances cut those pills. It will release all of the oxycodone at once and that can prove to be fatal. I'm sure that you know that already.
I don't know what dosage you are currently taking but you can talk to your primary and see if they will help you come up with a proper taper plan if you don't know how to do it on your own.
And maybe they can refer you to another PM doctor. Not all of them are like the one you found.
Hang in there,
Sandi
You came in prepared with a history of what is going on, have your questions ready for finding a solution and this is what you get???? I hope you can get a new PM soon. Your situation sounds very serious to me. Tapering of these meds has to be done correctly as you clearly know. Does he think you can find another doctor to help you with this in a snap? Is he setting this up and getting you right in?
I hope you get this all sorted out real soon. I don't know how, but I hope you can find a calm place to bring down your BP some. At that rate he should have sent you to the hospital to bring it down.
my pain doc and primary doc have been concerend about me developing opoid induced hypergisia like you mentiond since i've been on opiods for 5 years. They have weaned me off opiods and even my lyrica twice and had me just use my ativans an maxalts for a few weeks so when i went back on my pain meds so they would be more effective like they were when i first started them and it worked. LONGEST PAINFULL WEEKS OF MY LIFE! OMG! I know alot of people hear just can't do that. Way too much pain. I don't know if your one of those people but i just wanted to let you know that thats probably why he suggested it. I do NOT like the way he went about it and he shouldn't had jumped to that conclusion that you had hypersensitivity to pain due to your meds on the first visit.
Your BP scares me. I think a visit to your GP is in order, like others have said pain makes your BP spike and that should be the doc's first clue that your pain isn' t controlled. Even I know that and i'm no doc. You probably need a blood pressure medication unless your GP can help get your pain undercontrol until you find a good pain doc. Keep looking. It took me 4 tries to find my doc and i'm hangning on to him!
Big Big hugs i hope you get this sorted out, i just want you to know i've been where you are before. I feel fore ya
Take care
I couldn't believe it, say I hate oxycontin and what the new formula is doing to my body and I still get treated like Im a seeker! Hyperagelsia doesn't happen overnight but the side effects I had from going from OC to OP sure happened overnight! He acted like I was saying I was having more pain and wanted another drug on top of what Im already taking and that isn't TRUE AT ALL! He also accused me of being in withdrawal and that was why my BP was high when in fact I had ever bit of every drug Im prescribed in my system!!! Im not in withdrawals! GOD THIS IS SOOOO FRUSTRATING! It makes me so mad when they keep saying we don't accept medicare patients, then the PM office actually does accept my insurance and boom, this idiot walks into my appointment!
I even tried mentioning how many of you have had problems with this same drug and he looked at me like I must know lots of people on pain meds because I sell my meds to them! God, hook me up to a damn lie detector at every appt because this is getting ridiculous!
I go back to Dr Creepo tomorrow and quite frankly I guess I should be happy he is too dumb to realize what switching will do and hope he puts me back on Kadian for another try I guess! Funny things is that for 8 years my pain was stable and then I made the choice to get off methadone to get preggers! Find out I have severe pelvic adhesions, have surgery for it and now Im infertile and can't have kids! They always say but your so young, a 31 yr old shouldn't be on this much medication (which is only oxycontin and endocet for breakthru) No Lyrica, no gabebentin, no xanax, not even an anti depressant!!!!
If the oxycontin was still the old formula yes I might agree that I was hypergelsic but this is not my imagination! O and he didn't believe that I passed them whole in my BM either! Told me that isn't possible!!!!
sigh* sigh* sigh*
There was also a huge problem with increased sweating- I mean huge problem and it gave me a headache that was just unbelieveable. I finally talked to my PM who was more than willing to switch my medications to Opana , which worked much better this time around.
I hope that he will listen. Maybe you should print off some of the problems that others have had with the new formulation and bring it to him. I have done that in the past when having a problem with meds and my doctor was willing to listen.
Sandi
i'm getting all riled up over here for you. Withdrawlse my butt! If i had the energy and money i'd go down there with you to give this guy a pice of my mind. i'm so mad i have no advice
Thanks for the support! Apparently here we don't have PM docs that prescribe meds! General practitioners do all of the pain management I guess! My next city option is Spokane, WA but sounds like wa is going to get put through the ringer soon too and I don't know that I want to be part of a state enforced taper! arrrrghhh!
If not, my last option is to ask to swith to Opana and change my breakthru med to oxycodone 30mg and ask for provigil or maybe adderall for energy!?
I wonder what other meds are prescribed for energy? I have to find the will to get this weight off! Sometimes I think that maybe cold turkey w/ds would do it! Hell just make myself so sick that my body has no choice but to drop the weight! Arrrgghhh, man Im talking lots of nonsense lately!
My new man has been very supportive, so maybe further down the line, I'll have him to depend on for care and a driver when and if I do find a long distance doc!
Thanks,
Riss