Since it seems many of us (including myself) are frustrated with the lack of data regarding SIDS I have an idea. They seem to throw out supposed risk factors, etc. with nothing to back up their statements. I am becoming involved with the SIDS community in my state (California). I am frustrated and surprised that no one is contacting us SIDS parents to get info from us. I had an idea I wanted to run by everyone. I want to download a volunteer questionaire. This questionaire would be anonymous (so promote honest answers) and so that the person answering it cannot be identified. It would have questions pretaining to pregnancy, labor, your baby, etc. I would like to compile this information in a spread sheet to see what commonalitites there are, if any, and possibly share this information with any researchers in the future that may be intereseted in this data. Maybe if there are some things that many of us have in common it could point a researcher in a good direction for future research? Since there are no agencies or organizations doing this I figure why not? Maybe it can be put to good use one day for research. Again this would be voluntary. Only download and print if you are interested in doing so. What do you guys think? Is this something I should work on or not? I understand that many of you may not be interested and that is fine. But are there any of us that would be willing to do this?
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