Absolutely, they are the ones that made the mistake, not you. You were able to look beyond your grief and consider the fact that someone else may survive because of your donation. Not many people would have been able to do that with something like this. The ultimate decision is yours, but I think that you are definitely deserving, and hugs and all the support no matter what decision you make.

I understand where you are coming from, but I think that you will be glad that you went. It is though completely your decision & we'll back you all the way.

Hun, I can see where this is troubling, but honestly you made the ultimate sacrifice to help some other child have a chance at life. Yes, they screwed up, but you did not, what you did was selfless and brave at one of the most horrific times of your life. We were not given the option of organ donation with Nicholas and to be honest I don't know what we would have decided if we had.
If you can handle being back in that place then yes, you should go, but if you have any doubts, like possibly having panic attacks by just being there, then you may want to reconsider it, you want to move forward with your grief process and if going there isn't going to help, then don't. You know we love you regardless and support you no matter what!

I really want to go, but as I said I feel pretty jaded and don't honestly know if I can hold it together and see all the successful donors and receipients and know that there was an error made. At 1st I was not upset about it bur now I am really pissed that the guy messed up and did not sumbit Kaili's blood! It is his fault why 2 little babies will not receive parts of my daughter and it is his fault that my faith in organ donation has gone down the tubes. I know that is something he has to live with, butfor Sean and I, it was the only thing we had left to hold on to.
I still want the medal for Kaili, but the more I think about it the more I do not want to go to the ceremony... but as I said there is this tiny part of me that wants to go. I don't know why this is such a hard decision, but my emotions are all over the map for it.
I mean we would have to travel and lose wages, but as Sean always says "money is no object when it comes to our little girl" A greedy part of me wants to save the time off to tack on to our wedding and go spread a bit of Kaili's ashes over a waterfall.

Oh sweetie, I can definitely see why you would be so let down by the mistake, but Nicknick's mom is right, you made such a wonderful and brave decision and you did it from the goodness of your heart.

Ultimately, it will come down to what you think is best and you know that we will all support you either way, but I was just thinking...Maybe just by you and your husband going there and sharing your angel's story, it will in turn inspire another person to become a donor that would otherwise not have considered? Although it's not the same, maybe there is still some good to come of it? I know this sounds silly, but even just reading your story has brought so much light to a subject that I never really had thought about myself.

Want to know the irony in this? I was asked when I got my license originally if I wanted to be an organ donor and I said no. Tomorrow I am going in the a.m. to re-new my driver's license at the dmv (it expired a week ago and I didn't even notice until this morning) and because of you and your angel, I am going to change it so that I am a donor.

I know it's not the same, but I can honestly say that if I did not read your journal tonight, had you not shared your angel's story with me, I would not have thought to change it.

Big hugs to you sweetie...and thank you.

I learned sooooooo much about Organ Donation... like you have a better chance of recieving an organ than donating one.
I am still an organ donor regardless of what happened to Kaili and God forbid if I ever have to make that decision again I will do it, but I am just not sure if I can face all those people. The Hope Foundation said that we no longer had to do a speech and that they wanted to do one on us, but I just don't know. I am not sure why this decision is so hard. It should be a simple yes or no you would think!

There is no question you should go!!! You did donate. Even though they messed up doesn't change that fact. Even when everything goes right sometimes they don't use the organs that are donated. Would you still be a donor then? OF COURSE!!! As long as you are okay going there and giving a speech go for it!