I would like to know if there is anyone out there who has been diagnosed with Oslar Weber Rendu Syndrome. I've had 2 strokes because of it. My oldest son has had 3 strokes and brain surgery. I worry my youngest son has it. He's starting to have problems with comprehension. My oldest son has seizures. They call my seizures Sudo Seizures, which when I looked it up means fake. They say it's anxiety. For this reason I have quit going to the doctor, because I disagree. This never happened to me until I had the last bleed. It's been 6yrs.since so the episodes have gotten better with time. The last one I had was over a yr. ago. Sometimes I think I would love to talk to someone who understands what this is so I could get help dealing with this weird disorder. For yrs. I've just taken one day at a time and when a new issue comes up I just do the best that I can.
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