Spina Bifida Support Group
Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).
I was recently (last week) diagnosed with Tethered Cord syndrome, and a slipped disc in my lower back. I have always had trouble walking, but ever since this started 3 mos ago, it has gotten MUCH worse. I find myself losing my balance more, getting tired MUCH easier and having pain in my legs after walking. Has anyone else experienced this? I just walked down the hallway at my work (maybe 500ft?) and I am completely out of breath and having to sit.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
It's a little concerning to me that he had the surgery just 7 months ago, and it's already retethering. You'd think that a surgery that major would last longer. Makes me wonder...hmmm :)
Well as the Dr. explained it to me was that Camerons cord tethering was SO severe that he was NOT able to "un-tether" it all the way during the surgery. He said Camerons "dura" was practically non-existant and that his spinal cord was all tangled up with live nerves... He untangled as much as he SAFELY could, but that Cams cord was still tethered. The neurosurgeon, who is VERY well known in my state, told me that Camerons was one of the most difficult cases he has ever had.... MOST "de-tetherings" last for many years, sometimes never having to be repeated. The Neurosurgeon told me that he felt pretty sure that Cameron would have to have the surgery again at some point in his life...
Not the greatest outlook, i know. I worry all the time :(
I know the outlook doesnt look that great, I worry about Cameron all the time :(