Spina Bifida Support Group
Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).
I was recently (last week) diagnosed with Tethered Cord syndrome, and a slipped disc in my lower back. I have always had trouble walking, but ever since this started 3 mos ago, it has gotten MUCH worse. I find myself losing my balance more, getting tired MUCH easier and having pain in my legs after walking. Has anyone else experienced this? I just walked down the hallway at my work (maybe 500ft?) and I am completely out of breath and having to sit.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
It's a little concerning to me that he had the surgery just 7 months ago, and it's already retethering. You'd think that a surgery that major would last longer. Makes me wonder...hmmm :)
Well as the Dr. explained it to me was that Camerons cord tethering was SO severe that he was NOT able to "un-tether" it all the way during the surgery. He said Camerons "dura" was practically non-existant and that his spinal cord was all tangled up with live nerves... He untangled as much as he SAFELY could, but that Cams cord was still tethered. The neurosurgeon, who is VERY well known in my state, told me that Camerons was one of the most difficult cases he has ever had.... MOST "de-tetherings" last for many years, sometimes never having to be repeated. The Neurosurgeon told me that he felt pretty sure that Cameron would have to have the surgery again at some point in his life...
Not the greatest outlook, i know. I worry all the time :(
I know the outlook doesnt look that great, I worry about Cameron all the time :(