Spina Bifida Support Group
Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).
OK, I know this is getting way ahead if myself, but from the moment I realized that my unborn son may never be able to use his penis the way a man should; or never be able to have children, I have been unable to think about anything else. This may sound trite to some but I am sincerely concerned about it. Please if anyone knows anything about this peticular topic; good or bad, I would appreciate the insight. From what I understand, the level of the lesion can determine functionability; his lesion starts at S1 ( we think ). Thanks.
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
I had the same concerns for years.
My 19 year old son has had "experience" in this department. We have a really close relationship so I asked him what happened. He said that he did keep an erection but never ejaculated. His level is L 4-5.
Every man with SB is going to be different.
We asked his doctors about it a while ago because I heard that SB men are sterile. He said that they aren't necessarily sterile, it's just that they don't keep an erection long enough to ejaculate. Or don't have the muscles or something to that effect.
And as for ever being a father, medicine is so advanced now that men that are quadrapeligics (sp?) can father children. So I can't imagine what will be out there in 20 yrs.
Good luck with your pregnancy. And try to remember that your little bundle of joy is still basiclly just like any other baby.
meagan
L
Your concern is definitely not trite! My fiance has SB, and when we first started dating, I knew from the begining it would cause problems, but I don't think i really knew what to expect. Everyone is different, so who can say what will happen, but we have a very fulfilling sex life, but as a few of the responses to your issue have mentioned, ejactualtion is somewhat an issue, however, he has children from a previous relationhship concieved by IVF, but I'm pretty certain that he could have done it kind of naturally (embarrased face). I would totally wait and see what happens, and expect that it's very plausable that he could have an active sex life, and or have children. Hope this helps, and feel free to contact me if you'd like more advice etc. C.