
Spina Bifida Support Group
Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).

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Spina Bifda seems to run on my moms side and my dads side of the family? I had an older cousin that died shortly after born 1966 on moms side. I have a cousin on Dads side that has it. He is able to walk but cant control bladder. there is a couple more distand cousin. My brother was told when he was 30 that he has it. then theres me. They say genes have nothing to with it I dont believe that it is all folic acid. I Just wondering if it runs in anyone elses family?
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First of all SB can be caused from heridity, lack of Folic Acid, and Vitamin defiency. Also from Enviironmental like paint, household cleaning products are among some of the thingss. One journal form England said that sitting in a very hot Tub could casue neural tube defects. SB happens in the first ten days of conception so by the time you find out you are pregnant your baby could have SB. Most babies are found when a ultra sound is completed. There are over 60 million people born a year with SB Occulta and do not realize it. they just have bad back pains and a child will complain about their legs hurting. I founded the SB Assoc in our state in 1976 and have met many parents and children. I know of one family that has 3 children born with SB, one was adopted but the oldest and the youngest both have SB and are blood kin. I would nto ever discourage peopel from having babies even if they are diagnoised with SB. I know of too many parents that have SB and have very healthy babies.
My sister has a occulta; she is 43 and I have Myelomengecele. My family had never heard of it until I was born and my older sister was told of hers when she was in her 30's. Cat
And I'm sorry, I refuse to believe that SB is or ever was caused by potato eyes. Am I the only one that thinks this is ridiculous. fair enough I agree outside factors could contribute. But from what I have been made aware of which again may be wrong is that the exact cause isnt known. only how and when. please correct me if Im wrong. I just really dont think potato eyes have anything to do with it. probably poor diets smog and bad weather didnt help.
Who would have thoguht some 26 years after my daughter's birth that they would have programmable shunts? You place the shunt in the with surgery but if it needs revising they place the patient in the MRI and reprogram with a magnet. My daughter has one and it has already kept her from one surgery when her shunt just needed readjusting. So many new things that are so helpful to us.