Welcome to the group of the very best people you will ever meet. We will do our best to help you anyway we can.
My daughter will be 33 yrs old next month so we have been through a lot. Just treat him normal like you would any other child. There is more they can do for children born with SB today than there was 33 yrs ago. As a hospital Chaplain I have seen so many wonderful improvements. My daughter was able to get a programmable shunt. IT is so wonderful. This year she started having really bad headaches. She went to the doc and he reprogrammed the shunt with a magnet. No surgery. Praise God that He gives doctors wisdom to help our children. Blessings, Angelunaware

thank you so much my son is nset for mri to see if he is ging to need it i will ask if we can get a progamable one as well.
I will treat him as normal I ove him so much its so hard as I feel powerless in this whole deal I want to fix it and I cant. I wish I could bethe one going through it instead of him. thank you for the reply and god bless

I know how you feel. I felt and still feel the same way that you do. Children bounce back quicker than us adults. I wrote a book about my daughter and my expereince. My doc says it is the best teaching book he has read. there is nothing medical in it, just the emotional, mental, spiritual, physical and fianancial impact upon our family and how we survived through God's grace and goodness. You can find it at my website www.victoryonthethirdday.org I will be praying for yoru and your family

Just be patient and positive. I have Spina Bifida Cystica, am 31 yrs old. Until recently I have been very lucky. Never in a wheelchair (except after surgeries and stuff--but never for a long period). Full walking ability. Self catheterize 6x daily. Just get good docs and everything will work itself out!

My husband and I also have a little boy with spina bifida. He was born last valentines day and is such a trooper. Please let me know if you have any questions-- you and your wife are in my prayers.