Spina Bifida Support Group
Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).
Hi! I just joined. I am almost 19 weeks pregnant and just found out we are having a girl. She will be the sister to 2 older but very young brothers (currently 20 months and 7 months). I just found out that our baby girl has spina bifida located in the T12 L1 ? I know that is a pretty high lesion. I am feeling overwhelmed. I think alot has to do with also having the other young children. I was just hoping for some encouraging words, support, and helpful recommendations. I also have seen alot about this MOMS Study. I haven't really done any research, but has anyone actually participated in it? Thank you
deleted_user
I am actually a T-6 lesion person and at 38 there have been many challenges but I have mage it pretty good. I went to public school k-12 then 2 years of college getting my Assoc. I now hold a full time job. As I age I am having more bladder and bowel issues because both were very effected by the SB. As I was growing up I loved barbies and playng with my older brother. I grew on a farm and was around many farm animals. I messed with them some but there was always an able bodied person there to help me control them. As a teenager I loved make up and dreaming about boys. In other words I was pretty much normal, that would be my best advice treat as normal as you can
deleted_user
I have L4,L5, S1 spina bifida. I've had my ups and downs but I went to public school as well, got my associate degree and now have my dream job. Keep coming here for support and ask lots of questions. Welcome! Cathy
deleted_user
Im not sure what # my lesion is, but it's pretty low. I am 31 yr old male...consider myself VERY lucky....until the past 3 months, I have not had SB keep me from doing ANYTHING (Ski, mtn bike, hike, drive a car, hold a full time job, live on my own, get married). Just stay positive and find out anything and everything you can! And the people here are wonderful too! :)
deleted_user
We also just found out today that our little boy has spina bifida in the L2-L3 region. Not sure what is next, but very overwhelmed with this all.
deleted_user
hi i was in the same situation as urself. the docs gave me no hope for my daughter but Rhianna was born on 11th june 2006 and has amazed everyone. Rhianna is perfect in every way and when ur feelin down, just look down at ur pregnancy bump and think of all the mile stones ur beautiful baby will achieve and that will make u smile and realise ur special to have been given such a special baby :)
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
