Hello out there
My name is Micah, new guy to the site. Just hoping to make some friends who have the same issues I have with spina bifida.
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Hi, my name is Gabby, I am 15 and I have spina bifida and club feet. I can walk because I had surgery to correct my feet. My wish is to possibly find someone maybe my age that I could talk to and connect with. Right now, I don't know anyone who has what I have. Everyone I know are normal and they don't really understand. I just wanna share my feelings with someone who will understand.
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
It's so hard dealing with pain especially when you don't get any support from the person who your supposed to be closest to. So hard when your trying to deal with pain and that person treats you worse than the pain. Having hard time understanding why. unless you are having a good Day you are treated like crap and they make you feel worthless.