my name is melody.
yesterday I was diagnosed with Sjorgens and I already have hoshimotos. I am 26 years old and have been a marathoner and college track athlete. I'm a college track and XC coach as well.
However in the last year all the health issues have been debilitating. The thought I had lupus or scleroderma but now they says it's Sjorgens ... probly spelled that wrong.
anyway, I take thyroid medication already and my doc prescribed me antidepressants for the pain and depression which have been the worse.
i also have really bad reynauds and facial swelling an dry mouth and eyes.
i have so many questions and I'll probably be on here a lot.
I am blessed to have been able to see a few specialist and actually have answers to my suuuuppperrr weird symptoms! This disorder literally explains everything I've been feeling for the past 2 years
I am one of the least vain people i know. The song is definately NOT about me! NO makeup! No manicures or pedis. I shop in thrift shops and wear shoes that are COMFY!!BUT, my hair is falling out and I shed all over the house more than a pet...and when I look at pics of myself taken today compared to even a year ago ---- UGGGGH!It had happened to me decades ago on MTX and stopped when I stopped...
I'm still on 5mg prednisone so they need me off since I broke my leg by simply walking. They are thinking of switching me back to Actemra because the 'allergic reaction' I was having was probably undiagnosed Mast Cell Activation Syndrome. I'm now on meds for that and the doctors are thinking of trying again but monitoring me closely. Has anybody else had their immune system activate mast cells...