
Sjogren's Syndrome Support Group
Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

deleted_user
I am here because my Rheumatologist dianosed me with Sjogrens. I had a lot of Autoimmune disease symptoms, and no one would diagnose me with anything, and then I tested positive for SSA, so he said "you have Sjogrens."
I don't have dry mouth or dry eyes. I had a lip biopsy and a blocked salivary gland tested and both came back with no signs of Sjogrens.
I have overwhelming fatigue that comes and goes. Sometimes I have debilitating weakness, and rarely I have joint pain. I've been dealing with this since I was at least 23 (probably longer), and I am now 31.
I've had positive RF and the indicating ANA factor. I'm also Anemic and have been vitamin D deficient, for which I take vitamins. I also have hypothyroidism.
But is it safe for my doctor to assume because I have the SSA antibody that I have Sjogrens?
And the other thing...Now when I go to doctors for a problem (the dermatologist, for instance with some redness on my face), I feel like they just default to Sjogren's as the cause. The dermatologist just flat out said it was from my Sjogrens, and I wondered what she would have told me it was if she didn't know I had Sjogrens.
I am so sick of doctors at this point in my life, and I feel like no one really cares if I get diagnosed properly or if my symptoms are relieved. Just slap a believable diagnosis on me, bill me, and send me on my way...
I don't have dry mouth or dry eyes. I had a lip biopsy and a blocked salivary gland tested and both came back with no signs of Sjogrens.
I have overwhelming fatigue that comes and goes. Sometimes I have debilitating weakness, and rarely I have joint pain. I've been dealing with this since I was at least 23 (probably longer), and I am now 31.
I've had positive RF and the indicating ANA factor. I'm also Anemic and have been vitamin D deficient, for which I take vitamins. I also have hypothyroidism.
But is it safe for my doctor to assume because I have the SSA antibody that I have Sjogrens?
And the other thing...Now when I go to doctors for a problem (the dermatologist, for instance with some redness on my face), I feel like they just default to Sjogren's as the cause. The dermatologist just flat out said it was from my Sjogrens, and I wondered what she would have told me it was if she didn't know I had Sjogrens.
I am so sick of doctors at this point in my life, and I feel like no one really cares if I get diagnosed properly or if my symptoms are relieved. Just slap a believable diagnosis on me, bill me, and send me on my way...
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Thanks, though. I am going to have to find a 5th rheumatologist, I suppose.
Michelle
If I were you I'd do a completely blind history for your next opinion. Dont tell the next Rheumy anything about your previous history re Dr's concerned that way they wont get confused, prejudice,biased. Hopefully they will start from scratch again.
Al
If you are not comfortable with your doc or your diagnoses, continue to search for one that you are comfortable with.
Good luck. Take care and let me know how it goes.
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