Just diagnosed today and I been making doctor appointments after doctor appointments. I have been on the internet looking up more information and what to expect with the medication I will be on next week (Plaquenil). Any information will help, any advice and any comfort will do. I am a little scared and am trying to look at this as another obstacle I must try and figure out how to grab a wild bird in order to be examined. I am trying to look at it as work.... Am I doing the right thing or should I just focus on life changing experience.
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So.....Today I finally received my CPAP machine. After my tests showed that I actually stopped breathing 56 times per hour. And my oxygen level was dropping from approximately 100% down to about 70%. Being a Military Veteran, all the tests and the CPAP Machine were free. The Machines are quite expensive. And I want to say how much I appreciate the VA and our Government for taking care of...
I notice people don't respond a lot on this group. I don't fault anyone, I don't respond to people's posts on here either...I think those of us with IC are so discouraged and in such bad shape that we probably don't have the energy to support others...I know that if I ever found a treatment that worked I would be all over this site posting what worked for me. But to date nothing has ever...