Sjogren's Syndrome Support Group

Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

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Feels like sand in your eyes

Does anybody out there having a gritty feeling in their eyeballs.

Even when there's not. Could you explain what part of the eye yours is

Because I am experiencing the same thing and would just like to compare

it to somebody.

Replies

Tom59
Tom59

Dug, you have little oil glands in your eye lids. They release a oil to protect your eyes when they get clogged it produces grit. Take a hot towel or cloth and apply it to your eyes for about 4-5minutes hot as you can stand then after the heat massage the eye lids this will release the oils.

Mine has gotten so bad I use a vaseline on my lids to keep the grit out of my eyes this can scratch the eyes surface. You'll notice the grit is basically salt. Taste but don't tell. :-)

Whenever your vision gets blurry try the hot towel method it will clear your vision. Or maybe I should say it does for me.
deleted_user
deleted_user

My eyes get the gritty feeling, esp in the winter; my eye doc said the gritty feeling is from dry patches of the eye . He told me to wash my eyes with baby shampoo and a warm washcloth twice day. He also said to use the restasis twice a day and over the counter eye drops as needed. I also use a humidifier and vaporizer if my eyes are really dry.
deleted_user
deleted_user

What part of the eye does this happen to?
GailSK
GailSK

I have had the gritty, prickly feeling for several years, not constantly, but often--especially at night. Then late at night when I'm trying to read, my vision becomes blurry. My eye dr. said this week that I have corneal endothelial dystrophy, probably related to Sjogren's. That doesn't mean you have that, but it may be worth a trip to an opthalmologist. I was diagnosed by my optometrist, who has some fancy new technology that finds those problems, but I plan to get a second opinion also.
deleted_user
deleted_user

My eyes feel pricklely and gritty at times. Even a burning sensation too. My eye sockets also hurt. Almost as if there is a sore spot.

I use Refresh in my eyes. It is a liquidgel which is made from all natural ingredience. I find it helpful and it seems to last a bit longer.
deleted_user
deleted_user

this happens to my right eye only and it feels like something is behind my eye ball pushing it out. the majority of the pain comes from the top left part of my right eye in the crease.
Tom59
Tom59

People seem to be all over the place on this , but this is the name of the grit on your lids. This will cause scratches and eye irritation bigtime. I gave the only solution I've seen to this condition above. They do have some new treatments like anti-bacterial ointments.


https://health.google.com/health/ref/Blepharitis
4mysanity
4mysanity

My eyes fee like they gritty sometimes and they burn. Last Jan. I ended up in the Emergency because I thought I had glass in my eye. It turned out to be a "dendritic ulcer" to my rt. conea. It was so painful. I was immediately put on anti-viral eye drops and it cleared up the ulcer in a week. I was told that had we not caught it early, I could have had permanent damage to my eye or lost the sight in it. If I get that feeling again in my eye, Iam to go back to emerg. The drops were called " Sandoz Trifluridine " It was a prescription and it stung when I put them in. So please if you have a feeling in your eyes of glass in them, see a Dr. immediately.
deleted_user
deleted_user

My eye doc said use the preservative free drops,as we can be allergic to the prservatives..i know i was....does anyone have the blood red eyes through the night?...mine are terrible....but the viscose eye drops are good..thick and don"t sting.....huggs to all....
Tom59
Tom59

NEVER use an eye drop with preservatives! Really bad for your eyes longterm! I personaly use Genteal Gel- and Genteal night time gel also daily I use two others. One to clear my vision while reading the other as a more oily longer lasting one. Tears Naturale Free....
Everyone needs to use as many as they can to see which ones work best for you.

September issue of the Moisture Seekers goes over the condtion. Blephartis ....
...if anyone has access to it. I can probably post parts of it without getting into trouble.
DeetyB
DeetyB

Yea- another confirmation that I'm not crazy.
I suffer with dry eyes too but the grain of sand thing is what hurts the worst. I cant actually see the little spot on my eye. Mine will rest on my eye in the middle of my lower lid.
If I use some of my refresh I can wipe it off my eye. (sometimes I resort to soaking a swab with the eye solution)
While reading that the eye grit tastes like salt was kind of icky I feel better. It's not in my head and it was a grain of salt!

Where do you feel your grit? (ok- that sounds odd)
deleted_user
deleted_user

I mostly feel it in the corner of my eyes. I have had my tear ducts plugged to keep moisture in my eyes. Normally your tears are supposed to wash the dust and debris out of your eyes. Besides taken my Restasis twice a day, I will take Genteal as needed to keep eyes moist. Then I use PM refresh night before I close my eyes to go to sleep, otherwise everything will be blurry, like putting vaseline in your eye, I have been happy with this combination.

Talk to your doctor about maybe a prescription for restasis if you're not already on it. The rest would be found over the counter.

We will all get through this
like I say bring it on
DugEB
deleted_user
deleted_user

Ive had Punctum plugs put in my tear ducts twice. They are expensive but very helpful. Unfourtunately they can fall out. The eye doc will not permanently close my tear ducts as he feels Im too young but I wish he would!