Shingles Support Group

Herpes zoster, colloquially known as shingles, is the reactivation of varicella zoster virus, leading to a crop of painful blisters over the area of a dermatome. It occurs very rarely in children and adults, but its incidence is high in the elderly (over 60), as well as in any age group of immunocompromised patients.

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Muscle weakness

Has anyone suffered with weakness and fatigue in their leg muscles throughout this? The rash has healed but still burns him and even reddens a little.

Replies

deleted_user
deleted_user

I am quite fatigued and suffer sever muscle weekness and pain in my legs, however I am not sure it is Shingles related as my shingles was on my head and forehead and I also have osteoperosis and pettella femoral pain syndrome in both knees. I know feeling fatigued is a normal symptom when recovering from shingles or even PHN but I am not sure of the latter.
deleted_user
deleted_user

Thanks for your post. It actually helps me a lot because I don't think it matters where the shingles is, the weakness felt in your muscles is a side effect of it, or so I read. I'm sorry you've suffered too.
deleted_user
deleted_user

I could not believe the fatigue and weakness I experienced with shingles and continue to experience with PHN. It weakens your whole body, not just the affected area. It is very debilitating. Sometimes when I exert myself, I break out in a sweat like I have run a marathon. I also get short of breath. Will this ever improve?
Julia1953
Julia1953

Funny you guys mention this, I have been telling my family I'm so utterly exhausted lately, all I can do is work my full time job and come home and nap. I have very little "extra" energy. I had shingles (on my forehead) the entire month of March, and I am only recently starting to feel "like my old self". I still don't have an abundance of energy, but it is definitely improving, little by little. It doesn't happen overnight, that's for sure.
deleted_user
deleted_user

Hi Julia, the fatigue is part of the illness and sometimes it lasts long after the skin component has healed up. I have had a lot of illness and severe pain in my life (e.g., kidney stones and major abdominal surgery) but none of these pains came anywhere near the pain from the shingles. The day I was diagnosed, I took my medication and lay down in my bed and tried not to move anything because even the slightest movement sent shooting, stabbing pains in the affected area (neck and arm). I wanted to cry but didn't because crying caused too much pain. I thought how can I go on and live in this condition when I can't even move. So it seems I had a severe case of shingles. The rash cleared up fast but the pain, fatigue, fevers, weakness lasted for months. My right shoulder and arm still have quite decreased sensation compared to my left although the motor component is totally intact. I asked my doctor if I would get the sensation back to normal ever and his response was "hopefully" but no guarantee. Kind of scary how this virus can attack the body in this way forever changing it.
deleted_user
deleted_user

I was just diagnosed with shingles yesterday, and I am already experiencing this type of fatigue. I was never a very fatigued guy before; I ride my bike to work each day (12 hour round trip), go to the gym to lift weights, etc. But now I have trouble staying awake watching TV. Shingles is really not going to be fun, is it?
deleted_user
deleted_user

I do suffer with fatigue sometimes, not as much as I was but I have bad days, rash is still there but is lighter. I have a very painful place will occur on my back and front at the same time and bore right through me!
deleted_user
deleted_user

My sympathy to all of you. You've involuntarily now a part of "the shingles club". In addition to pain and fatigue, you may also notice less ability in coordination.

For such a funny-sounding name for a disease (Shingles), I find NOTHING very funny about it at all.
deleted_user
deleted_user

Good morning everyone! I was diagnosed with Shingles in 1999 but had them for 2 years before actually being diagnosed. Unfortunatley all the side effects mentioned are commom for Shingles. Also, the pain can remain for years afte the lesions are gone. When mine started, I would break out once a month, and after about 5 yrs they became so bad I would break out twice a month. I would actually break out in Shingles on top of Shingles that had'nt even healed yet! They burn, itch and in some instances will bleed. Befor I scare anyone, my dr's told me I was "textbook" and this is rare in most people. I take Valtrex daily for prevention, and Famvir when I am actually broken out. Nothing works for me but I continue to take the meds. I have taken everything there is and have also had injections to each and every Shingle..ouch!!!!

On the up side, most people get who get Shingles will only have them once and I hope this is the case for some of you here.

This is such a debilitating desease and I feel so sorry for anyone who has had them.
deleted_user
deleted_user

I had 2 out breaks in a month and a half. I still have pain daily. I take Gabapentin and Relafen. BUt yes I have the wekens and pain in my legs and ankles
bettyvasquez
bettyvasquez

I was diagnosed with shingles at the end of March and have been off work since end of April with leg weakness that makes it difficult to get around let alone commute 45 minutes. My doctors have been doing test after test and seem to be at a loss as to what is wrong with me. If it is so common, what is wrong with my doctors and how are they missing this? I have an appointment Friday and I am going to bring this up to her (rheumatologist). I have Fibromyalgia and Autoimmune disorder. Thank you all for your detailed account of the issues with leg weakness.
deleted_user
deleted_user

I am so glad to know this is part of the after effects. Mom has leg weakness and has had since the rash left. I knew about the fatigue but muscle weakness isn't something that was talked about much before.
Thanks for bringing up the subject!
Lee4Life
Lee4Life

I am nearing the two year mark of having facial shingles, the visible symptoms have healed, except for redness and slight swelling when stressed or tired, but the pain and fatigue continues to be bad. I did notice muscle weakness, but attributed it to just not being as active as before due to the fatigue, I hadn't thought of it as a directly related symptom.
I live in tropical Thailand and I it seems that my symptoms worsen considerably during the hot and humid seasons.

Although it has been a long haul, I do take comfort that I can look back on worse times.
salliefeavel
salliefeavel

Does anyone suffer from gastro intestinal problems after shingles?