Yesterday my 21month old was diagnosed with this and we are waiting to get an appointment with the OT, but she also went to speech and again we are waiting for that to be approved. She speaks at a 9mo-12month level. She comprehends at a 12-15month level. Her motor skills are way above average. My concern is I feel like we were blind to what we were dealing with. She spun in circles and flapped her arms all the time. We thought our " baby bird " was sooo cute.. and now it makes me want to cry. Mainly because I should have known something was wrong months ago. And I didnt. I have a ton questions about what is to come and what to expect. I've read about the massages and brushing. She can't drink from a cup because the moment liquid touches her face she jerks back and spills it down the front of herself. We thought she was just being silly...and now this. She always tries to be free and diaperless.. Again we thought she was just stubborn. I have a lot of guilt over it because how much sooner could she have really gotten help? She's a climber so much so she likes to lay across the back of the couch like a cat. Very picky eater in the sense, this morning she LOVED eggs.. but last time spit them out and dumped the plate. Same eggs...I was getting soo frustrated with her for so long... then I find out it's an actual diagnosis.. Just made me feel bad for her. Neighbor plays his music too loud so she bangs on the wall. Little noises distract her. Like from across the room the Hanzel and Gretel Verizon commerical comes on and she RUNS to watch it. She loves the music of it. Everything just seems so random...I would love some one on one with a parent who dealt a toddler arond 2, but really not picky. I just need to know what to expect.
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