Scoliosis Support Group

Scoliosis affects all ages. Unlike the naturally occurring curves in the spine, scoliosis causes the spine to curve abnormally to the left or right.

525 Members
1,096 Posts
0 Online
Muscles & Bones
/ Scoliosis Support Group

Shuermann's Disease/Kyphosis

deleted_user
deleted_user
There is a life long story behind this and if anyone is interested I will be happy to explain but just to make a long story short for now, I had spinal fusion surgery to cure my severe 90 curvature in my spine I had minimal Scoliosis but my spine was actually twisted and it is congential. I was diagnosed with Shuermann's Disease when I was 14 years old officially and spent the next 4 years in braces (including the Milwakee Brace which was pure torture) I spent my day 23 hours a day in braces. I was wondering if anyone else here suffers from this very rare disorder??? I have only heard of a few people who have been diagnosed and I think that is why it has made it so hard to deal with the illness. thank you for listening!

~Chrissy
deleted_user
deleted_user
hi:)
wow you had a big curve too.
deleted_user
deleted_user
I have never heard of this disease but will have to look into it.
deleted_user
deleted_user
yep a 90 degree curvature is bad it was starting to affect my longs and my heart....I was basically caving in on myself....it sucked....but yea this disease is rare...I traveled from Pa to DE just to have my surgery done at a well known children's hospital...Alfred I Dupont Nemours Foundation....
jrhopper09
jrhopper09
I have shuermann's disease and I have not ever been treated. my curve is 70 degrees and sometimes I feel so ugly and deformed. I am not sure what to do or where to turn. I am terrified of a spinal fusion which my dr sugested. I went throught the brace thing too and it was HELL for me as well. to make this short I have some serious self esteem issues from this. I hope we can be friends and help each other out.
Posts You May Be Interested In
  • irishwriter

    come unwind in the bp lounge

    Posted by: irishwriter
    Last Reply: kisses2016
    7992
    theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: Rizen
    2567
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...