There is a life long story behind this and if anyone is interested I will be happy to explain but just to make a long story short for now, I had spinal fusion surgery to cure my severe 90 curvature in my spine I had minimal Scoliosis but my spine was actually twisted and it is congential. I was diagnosed with Shuermann's Disease when I was 14 years old officially and spent the next 4 years in braces (including the Milwakee Brace which was pure torture) I spent my day 23 hours a day in braces. I was wondering if anyone else here suffers from this very rare disorder??? I have only heard of a few people who have been diagnosed and I think that is why it has made it so hard to deal with the illness. thank you for listening!

~Chrissy