just a quick intro, my daughter Charlotte is currently waiting on surgery at Stanmore hospital (UK) she has an S curve with the top curve measuring 77degrees and growing fast! She too has trouble breathing - not too severe but has problems shifting coughs suffers from shortness of breath and finds it difficult doing sports at school and has trouble standing for long periods we did apply for DLA but got turned down not quite sure how severe it has to be to get it!!
She has just got her brace but is really struggling with it and it is becoming a battle of wills about her keeping it on. She is booked for surgery on 3 march so fingers crossed. If anyone in the UK is in a similar position I would like to hear from you just need to talk to other parents going through the same sort of thing and how they deal with pracicalities of time off of work caring post op etc.