
Scleroderma Support Group
Scleroderma is a rare, chronic disease characterized by excessive deposits of collagen. Scleroderma affects the skin, and in more serious cases it can affect the blood vessels and internal organs. The most evident symptom is the hardening of the skin and associated scarring.

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I would like to talk to any others with Morphea diagnosis.
I also suffer with all over itching, Raynauds, and IBS.
The Itching, the Raynauds and the Morphea combo scares the bejeezus out of me that I have sytstemic or limited scleroderma, instead of localized. Neighbor died of systemic, and ... well, it scares me.
Do any of you morphea patients have overlap, or secondaries like lichen sclerosis (I have had biopsy to rule this out, waiting for results).
How is your morphea treated?
Do you have raynauds, and if so, for how long?
I'm scared, I'm concerned, and I'm freaking out...I need to stop reading!!!! Yet have this compulsion to do it always!
I have had a negative ANA
all clear on the anti-smoothmuscle antibody
all clear on the antimitocondrial AB
and have been told that only 0-2% of those with morphea develop systemic...
know what? I'm still scared!
I also suffer with all over itching, Raynauds, and IBS.
The Itching, the Raynauds and the Morphea combo scares the bejeezus out of me that I have sytstemic or limited scleroderma, instead of localized. Neighbor died of systemic, and ... well, it scares me.
Do any of you morphea patients have overlap, or secondaries like lichen sclerosis (I have had biopsy to rule this out, waiting for results).
How is your morphea treated?
Do you have raynauds, and if so, for how long?
I'm scared, I'm concerned, and I'm freaking out...I need to stop reading!!!! Yet have this compulsion to do it always!
I have had a negative ANA
all clear on the anti-smoothmuscle antibody
all clear on the antimitocondrial AB
and have been told that only 0-2% of those with morphea develop systemic...
know what? I'm still scared!
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I was really scared when I found out I had Scleroderma. Mine is the Systemic kind I guess. I've had internal problems (Achalasia of the esophagus, arthritis / bulging disk in back, epilepsy, asthma, Raynauds) since '94 and didn't get diagnosed with Sclero. until January 2007. The only difference now is I'm achier, I have a constant really stiff neck and my hands are swollen with less mobility of my hands, neck & back. So it sounds scary but systemic type is not necessarily all that bad. At least not for me, so far I've been lucky, thank goodness. It's painful, but bearable & I can still get around. Hopefully you don't develop the systemic kind though.
Thanks for posting the topic qbuckley.
It is scary. It stinks to be honest. Lean on your support team to get you through it!
Lets all support each other through this!
Gotmoxie