I just wanted to write and say hello to everyone. there are not very many groups out there for us. I was diagnosed in august of 2008 with Scleroderma, but I have been ill since 2006. It was very hard figuring out what was wrong with me because the doctors kept telling me that I just had asthma. I finally found an amazing medical center and spent a week there going through intense testing. I had my diagnosis by the end of that week. Scleroderma has Caused me to have end stage interstitial pulmonary fibrosis and now I am going to have to have a double lung transplant. Has anyone else had or are going to have to have a transplant?
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