Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
Chest xray, lung function tests, serum ACE levels, serum calcium, gallium scans, and lymphocytes in bronhoalveolar lavage are some of the tests used to assess activity. Comments?
Dr O.
Dr O.
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
I have a strange situation. I get chest X-Rays,I have gallium scans, and my ACE levels checked. Everything seems to be pretty normal. The biopsy on my heart showed that I am the 1-2% of the population that just got in my heart tissue. Just hoping that in time and with Methotrexate it will stabilize. What are your thoughts on getting older with sarcoid? I have read where people seem to \"grow out of it\" alot of times after they reach a certain age. It seems more prevelant in a 25-35 yr. old male. Thoughts?
My problem is I just havent seen many patients with cardiac sarcoidosis so cant really tell you about my experience...I wish I could. I have had patients with OTHER restrictive cardiomyopathies (which is what sarcoid can do) who do very well.
You are an interesting case and lets hope someone gets on this community with a similar story because I dont have much to add...MOST of our sarcoid patients do very very well though
Dr O.
i WAS WONDERING IF THERE ARE TEST TO PRADICT SARCODID. my greatanut has sarcoid and so do i how what are the chances my daughter will have it and there any test we cand do to find out. my doctors say that noone knows if sarcoids is heredatary and it is just a fluk that my greatanut and i have it
http://jawediqbal.hubpages.com/hub/New-World-Order-and-2012