Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
Chest xray, lung function tests, serum ACE levels, serum calcium, gallium scans, and lymphocytes in bronhoalveolar lavage are some of the tests used to assess activity. Comments?
Dr O.
Dr O.
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Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
I have a strange situation. I get chest X-Rays,I have gallium scans, and my ACE levels checked. Everything seems to be pretty normal. The biopsy on my heart showed that I am the 1-2% of the population that just got in my heart tissue. Just hoping that in time and with Methotrexate it will stabilize. What are your thoughts on getting older with sarcoid? I have read where people seem to \"grow out of it\" alot of times after they reach a certain age. It seems more prevelant in a 25-35 yr. old male. Thoughts?
My problem is I just havent seen many patients with cardiac sarcoidosis so cant really tell you about my experience...I wish I could. I have had patients with OTHER restrictive cardiomyopathies (which is what sarcoid can do) who do very well.
You are an interesting case and lets hope someone gets on this community with a similar story because I dont have much to add...MOST of our sarcoid patients do very very well though
Dr O.
i WAS WONDERING IF THERE ARE TEST TO PRADICT SARCODID. my greatanut has sarcoid and so do i how what are the chances my daughter will have it and there any test we cand do to find out. my doctors say that noone knows if sarcoids is heredatary and it is just a fluk that my greatanut and i have it
http://jawediqbal.hubpages.com/hub/New-World-Order-and-2012