Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
Hello. I do not have Sarcoids, my spouse does. We just received a confirmed diagnosis yesterday. It feels like our biggest problem is no one knows what to expect. Right now there is a problem with breathing, but we don't know what will happen next. I guess I'm just looking to talk to people who have been dealing with it to find out what to expect, how bad could it get.
Thank You
Thank You
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
i have sarcoid i was diognoses 5 years a go evryone is diffrent and sarcoids effects evryone diffrently the most importent thing that i found was regular check ups and taking the mades properly no matter the side effects. Helps keep evrything from getting out of controle.
What are his symptoms?
SARCOID AFFECTS EACH PERSON DIFFERENTLY. FEEL FREE TO ASK ME QUESTIONS, IF YOU HAVE ANY. GOD BLESS. TAKE CARE, STAY POSITIVE.
I would tell you not to read too much about the disease online!! Not everything you read is true. And like everyone said sarcoids takes a different path for all of us. There's no way to predict what will happen next. Trust me--I would love to know what's around the next corner with this disease. I have neuro, which started in my lungs--or so we think--they'll never know, but I have friends who have it and it never left there lungs and they never medicated. It went away for them. So remain hopeful and know we are all here for you if you have questions. And if you doubt what your doctor says at any time don't be afraid to get another opinion--not all doctors are schooled in sarcoids and how to treat it! I hope you have a great day today!! :)
--jenn--
Advice: Always go to the Droctors office with a list of questions. Stay connected with a support group. To learn more about Sarcoidosis, only go to University or Research affiliated websites. Have patience with your spouce and try to stay positive.