HI
i have sarcoid i was diognoses 5 years a go evryone is diffrent and sarcoids effects evryone diffrently the most importent thing that i found was regular check ups and taking the mades properly no matter the side effects. Helps keep evrything from getting out of controle.

The meds may make him cranky and hard to live with. Remember it is the meds talking, tell him to listen to his body, rsst when he is tired --try to keep a positive attitude. Keep thinking about what it will be like when he is well again.
What are his symptoms?

I'VE HAD SARCOID FOR OVER 25 YEARS AND THE MAIN THINGS I'VE LEARNED IS TO LISTEN TO YOUR BODY. GET PLENTY OF REST, STAY AS STRESS FREE AS POSSIBLE, TAKE YOUR MEDS, GET REGULAR CHECKUPS (MEDICAL& EYE EXAMS). THE MOST IMPORTANT THING IS TO KEEP A POSITIVE ATTITUDE.
SARCOID AFFECTS EACH PERSON DIFFERENTLY. FEEL FREE TO ASK ME QUESTIONS, IF YOU HAVE ANY. GOD BLESS. TAKE CARE, STAY POSITIVE.

Hi-
I would tell you not to read too much about the disease online!! Not everything you read is true. And like everyone said sarcoids takes a different path for all of us. There's no way to predict what will happen next. Trust me--I would love to know what's around the next corner with this disease. I have neuro, which started in my lungs--or so we think--they'll never know, but I have friends who have it and it never left there lungs and they never medicated. It went away for them. So remain hopeful and know we are all here for you if you have questions. And if you doubt what your doctor says at any time don't be afraid to get another opinion--not all doctors are schooled in sarcoids and how to treat it! I hope you have a great day today!! :)
--jenn--

My husband has had diagnosed Sarcoidosis since 2003. They think it started in his lungs. But the diagnosis came about when he began having neuro deficits. Now they think it is in the bones of his spine and possibly his hands. Just as everyone has said, it is a hard to tell what will be in the future for your spouce. Each case is so different. And many doctors have only treated 1-2 cases. My husband goes to 3 specialist now and possibly more to come.
Advice: Always go to the Droctors office with a list of questions. Stay connected with a support group. To learn more about Sarcoidosis, only go to University or Research affiliated websites. Have patience with your spouce and try to stay positive.

Welcome to the group!!! I f you have questions just ask.