Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
I have just been diagnosed with sarcoidism. I am in so much pain that I can barely type here. Anyone who has any idea what I am feeling please contact me. I would really like to make some fiends with others who know what I am going through. To any one who has sarcoidism my prayers are with you and I wish you lots of luck,love,and support!
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
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Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...
i have a great husband who works 2 jobs 6 days a week somtimes 7 because i can not be a mom to a 5 year old active girl and work at the same time. i try to go back to work after my maternity leave i had been sick for about 6 monts then but was in too much pain and had to take to much prednason and pain kills i gave myself an alser so my husband said my daughter was more importent i am always home if you need to talk to someone
from one sarcoidian to another... my best to you. ~s57
What type and level of Sarcoid do you have, did they say?
Mine in in my lungs, caused Pulmonary Fibrosis, now Pulmonary Hypertension, on prednisone for 2 years, coudamin and now Oxygen..going on the transplant list soon.
But have faith, My doc says I am the extreme, most people with Sarcoid go into remission and it never bothers them again....I must caution though that my brother also has sarcoid, though not as bad, in his eyes and lungs..and he goes in and out of remission..so it varies.
My only advice is to try to live as normal as you can, for as long as you can and hopefully your's goes into remission.