Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
I just popped a positive PPD,(TB test)so but the chest xray is negative for active TB, so I can't spread the disease. In 2003, I started having neurological problems, soon after I came back from a trip to Spain. I couldn't walk, and I was diagnosed with myoclonus, extreme fatigue, possible MS, and eventually fibromyalgia. It all came on all of a sudden. Within about a week. A year ago a couple of small fibroids were spotted in my lungs, and clots were ruled out. Since Active TB does not seem to be the case, does any of this seem to ring for sarcoidosis? It's just all to funky to not click together.
Thankfully, by the grace of God and my Irish temper, I have gotten my butt off the canes and I am walking again. Modern medicine(you can look at my list) helped. If anyone can help, please please offer suggestions.
Thankfully, by the grace of God and my Irish temper, I have gotten my butt off the canes and I am walking again. Modern medicine(you can look at my list) helped. If anyone can help, please please offer suggestions.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
Anyway, he now thinks I am having some immunological issues and liver disfunction because I reacted quickly to the TB meds and I can't take them. The sarcoidosis is ruled out, the nodule is definately negative and I have to have it scanned ever year forever.
So, I guess I will just keep an eye on it!
Thanks!!
Donna