Sarcoidosis Support Group
Sarcoidosis is an immune system disorder characterised by non-necrotising granulomas (small inflammatory nodules). Virtually any organ can be affected, however, granulomas most often appear in the lungs or the lymph nodes. Symptoms can occasionally appear suddenly but more often than not appear gradually.
I just popped a positive PPD,(TB test)so but the chest xray is negative for active TB, so I can't spread the disease. In 2003, I started having neurological problems, soon after I came back from a trip to Spain. I couldn't walk, and I was diagnosed with myoclonus, extreme fatigue, possible MS, and eventually fibromyalgia. It all came on all of a sudden. Within about a week. A year ago a couple of small fibroids were spotted in my lungs, and clots were ruled out. Since Active TB does not seem to be the case, does any of this seem to ring for sarcoidosis? It's just all to funky to not click together.
Thankfully, by the grace of God and my Irish temper, I have gotten my butt off the canes and I am walking again. Modern medicine(you can look at my list) helped. If anyone can help, please please offer suggestions.
Thankfully, by the grace of God and my Irish temper, I have gotten my butt off the canes and I am walking again. Modern medicine(you can look at my list) helped. If anyone can help, please please offer suggestions.
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
Anyway, he now thinks I am having some immunological issues and liver disfunction because I reacted quickly to the TB meds and I can't take them. The sarcoidosis is ruled out, the nodule is definately negative and I have to have it scanned ever year forever.
So, I guess I will just keep an eye on it!
Thanks!!
Donna