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Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and muscles... The symptoms that distinguish rheumatoid arthritis from other forms of arthritis are inflammation and soft-tissue swelling of many joints at the same time (polyarthritis). The joints are usually affected initially asymmetrically and then in a symmetrical fashion as the disease progresses. The pain generally improves with use of the affected joints, and there is...

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Night sweats, what do you do?

Does anyone else have "night sweats"? Mine come & go, but lately I go to bed feeling cold. I don't use several blankets at this time of years. Use a ceiling fan on low.
BUT now I've been waking up in the middle of the night just drenched! The pillow are wet and the bed. I wake up change my bed clothes and try to sleep again.
Most times I have to go to the sofa, to sleep sitting up. I'm sure I'm not the only one going through this. But do know that it means I'm in a flare-up stage. That has been going on for awhile, for pushing myself too hard.
I have AS- Ankylosing Spondylities is a certain type of arthritis the fuses areas. And Fifro.
What do you do with "night sweats"?
HELP?

Replies

deleted_user
deleted_user

Hi KylieAnn,

I feel your pain! Well, I should say your sweat! I have lots of sweating problems in general... I sweat profusely all the time but I also have Addison's diesase for which I take steroids several times a day and we (the doctors and I) think that has something to do with the reason I sweat so much. HOWEVER, it is still somewhat of a mystery because I was sweating profusely before I began treatment for Addison's Disease. Sometimes it gets worse and I still can't figure out why or what to attribute it to. Sometimes I have night sweats so bad that like you I have to get up in the middle of the night and change where I am sleeping.

My only guess for myself is that it may relate to hormones. One of my doctors did explain it to me that the body sweats to release toxins so when it increases in sweating there are an abundance of toxins of some kind (anykind - could be a virus, bacteria, allergy, illness acting up or in an inflammatory state, etc...) releasing. When I really thought about that and digested it, it does make sense.

So, now when I sweat and am really frustrated that I can't figure out why exactly I try less to add an additional medicine to make it stop and try harder to find the root cause of why it is happening within my body - what is the toxin? Sometimes I succeed and sometimes I don't.

I'm sorry if I just went in circles there and wasn't really any help. I guess I really just want you to know that you are not alone! I suffer with you and have tried to use it as a communicator from my body that something is "out of whack" and I need to pay close attention to get it back into whack and treat myself well.

You are in my thoughts!
Cosby
CharlieBaxter
CharlieBaxter

Are you on Prednisone? It will cause night sweats. I had them for a long time. A lot of mine came before the P. and it could have been other things but when I went on P it was bad. Charlie
deleted_user
deleted_user

" To answers a few questions that are great ideas.
I had a surgery for a Hysterectomy years ago. No need for medication for menopause last 7 years.
Medication I'm on are: Methotrexate .5ml injection 2x week
Celebrex- 200mg 2x a day
Lunesta 1 at bed time but doesn't last all night
Pain management- Fentanyl patch 75 mcg- 3-4 days per patch
Norco- 10mg/325mg 2 3x a day. I don't take it near bedtime because it keeps me awake.
Diazepan 5mg 2 pills at bedtime
I did take oxy for years but caused a blockage that require surgery. So I stop that stuff.
I don't drink any caffeinated drinks at all. Only water, cut my smoking in half, my goal is to stop by Sept 4th. So far so good.
For years I took Prednisone for years, but the weight gain cause more pain.
Since I've been on the Methotrexate injections over a year, I've lost over 40 pounds, made me more active. I don't have the need for naps as much as I use too. "
bigiblue
bigiblue

I have had night sweats due to menopause and am taking Vagifem and Remifemin(black Cohosh)
It helps a little, but sometimes I wake up drenched also. It must also be RA.
thinksRAstinks
thinksRAstinks

I used to have awful night sweats when I was on prednisone. Like you said - I might have started out cold but in the middle of the night I'd be drenched. My solution was before bed I would powder myself up with baby powder and put on an absorbent sleeveless t shirt. Then I would wear my PJ's on top. In the middle of the night I would remove the drenched t shirt, powder myself up again and put on a new pj top.
purplekitty
purplekitty

I hate to sound like I am disagreeing with everyone else, but I had the sweating long before my diagnosis and any of the meds and also before there were any mid life hormonal issues. When I have a flair, they get worse.
deleted_user
deleted_user

I have them along with hot flashes and wondered for awhile if I could be entering a premenopausal state (I'm 39) but my doc's assistant thinks it's the Prednisone (I take it daily). I can deal with night sweats. I can deal with hot flashes. It's the flare up pain I detest.
TerriH52
TerriH52

When I was on Pred. for 2 years I had so many hot flashes I was miserable. As soon as I was weaned off of it they slowed down greatly. Having had a hyst. 25 years ago I have hot flashes but not too bad. I was one of the lucky ones and the hormone issue has almost always been just right. i have noticed since officially diagnosed with RA in Feb. 2007 when I am fixing to experience a flare up I have a tremendous amount of hot flashes and have night sweats a few days before it hits.
phandbj
phandbj

I drink ice water and put a small fan in the face
deleted_user
deleted_user

It's so true, that I had my "night sweats" way before everything.
I do know it has to do with being at major Flare-up. The winter & spring I was fine, Then the hot summer HIGH humidity kick my ass. The need for pain needs. Staying indoors more.
With everyone help, I put a large beach towel on the bed & pillow. I always had Ice water at the bedside but will drink it more.
I called my doctor today and she increased my Methotrexate a little.
deleted_user
deleted_user

My sweats started with prednisone, for asthma. It really never stopped, although worse during menopause. It also seems to have something to do with breathing, still. Sometimes when I play flute, I break out in a worse sweat than when I am exercising.

Hyperhydrosis, is the medical term, I believe - my face is the worst. I almost don't notice it any more - after about 15 years. Everyone just breaks into a sweat for no reason, don't they??
JillyT
JillyT

No one has mentioned having fevers. When I flare I have fevers and of course the resulting sweats. I have had horrendous sweats long before RA. I was and am overweight and anytime I have sugar I break into a sweat and my blood sugar is normal.
LynnRivers
LynnRivers

Blood sugar can be a big one so make sure you get checked out by a fasting glucose test.

Mine is the RA or the hormones... haven decided yet. I was doing a little reading on Premature Ovarian Failure and like syndromes. Some are caused by autoimmune attacks on the ovaries and uterus. Unfortunately there is no good testing procedures to diagnose this... especially early on when your still getting your period.

The autoimmune attack creates a hormone imbalance because the uterus and ovaries are responsible for secreting substances that keep our systems in check and our cycles normal.

I think it wouldn't hurt to get the full hormonal work-up on a regular basis (twice a year). I plan on asking my GP to do this the next time I'm in.

I haven't found anything that stops the night sweats. I keep a little cooler in the bedroom with a soft cold pack in it and put it on the back of neck when it gets bad. I bought a portable AC unit for my bedroom this summer because with the heat and the night sweats combined... I wan't gonna get any sleep. I've learned to sleep through the noise of the AC (on full blast).
deleted_user
deleted_user

I had a hysterectomy last year just before this RA stuff started and my hot flashes due to hormonal imbalance actually improved after that. But this summer, with this humidity, they are making me crazy. It is mostly my face, neck and chest area. I agree that the baby powder works wonders. I use it several times throughout the day as well; it keeps the burning sensation down.
deleted_user
deleted_user

This may sound rediculous to some of you, but I hate the sweats so much at bedtime that I leave the air-conditioner on all winter, even when it's 30 degrees outside! It's a miserable feeling to wake up drenched and I can so relate to all of you and your coping methods. I've had issues with nightsweats since long before meds. I was 35 when they started and I'm 60 now. I will wake up all during the night and throw off all the covers, only to wake up 20 minutes later because I'm freezing cold! Methotrexate and Prednisone made things much worse. I'm glad I'm off the MTX. I don't think they're ever going to go away, so I've learned to cope in my own little way.
It's nice to know we're not alone, but I'm sorry for all the misery we RA people endure.