Just spent several days in the hospital only to find out my relapsing polychondritis is getting out of control for those who don't know about RPC there are just a handleful of websites it is a very rare 1 in 250000 affected auto immune disease that affects your cartiladge. In my case swelling my windpipe closed. I will need to undergo a tracheotomy soon the 1000 mg of steroids a day is not keeping my airway open enough. The Drs. think the trec may only be needed for 6-8 months until we see if the third round of chemo will work. I am getting so tired. I feel very much like a lab rat. This is all on top of having severe RA & Fibryo. I don't want to feel sorry for myself, but I just feel like I have lost so much of my life. I am a self employed interior designer & my Dr. just put me on full disability, which is making me feel so guilty! I guess for everyone of faith if you could just say a short prayer.
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