I have been flared up since April when my doc tried to cut back on the prednisone. Right now, I am on 20 mg of prednisone daily and 10mg weekly of methotrexate. I was just taken off 400 mg of hydroxychloroquine to see if that would stop my hair loss. I feel horrible most of the time. The pain gets better until I push myself and do simple things...well, used to be simple. The pain is also spreading to other joints now...ankles, knees, hips, wrists, fingers and elbows. My fatique is through the roof...I go for about one hour and a half and then fog comes over me. I am so confused...common sense tells me the medicine is a helping and hurting at the same time if that makes sense. I am going for a follow up on Friday...what should I ask for? I don't know if this is normal and I am just inpatient...????
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