Ok, let me start with a brief history....started having pain in my feet on July 27th of this year. Within a week I was not able to walk and my feet swelled to three times their size. Went to my PCP and he did bloodwork to find that my ANA was positve. Sent me to a rheumy who by physical exam said it was RA (both knees were swollen by this time). He sent me for more bloodwork and my ANA came back positive again and my sed rate was elevated. He put me on Prednisone and methotrexate. By day 2 on the prednisone my pain was 80 percent better and the swelling went away. Now here is where the frustration starts....I changed rheumatologists and was sent for more tests and x-rays. X-rays did not show any damage, my ANA was still positive and my DS-DNA was only slightly elevated and RA factor neg. He looked at me and said for me to come off all meds and check back in a year because a positive ANA does not mean anything....at that point I went into tears....I know my body and I know when there is something wrong!!!!!! My mom comes with me to all appointments and she explained that he never saw me when my feet and knees were swollen. His advice was to wait until I am in that much pain and I am swollen again then told me to pick a foot, which I picked my left one, and he said he would write a script for left foot MRI for me to use when the swelling is back. I have read so many posts on here and see that if it is beginning stages of RA then you can have normal xrays and not everyone with RA has a positive ra factor. I was on the methotrexate for 6 weeks and if it shows that I do have RA I am going to have to start all over. I feel broken down and feel like my pain and symptoms are just being dismissed. Any advice or comments would be appreciated...you all have been like a life-line for me through all this!!!!! Oh, and sorry it was so long....I got some venting out while writing this...lol :)
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