My RD told me not to expect to know if the Orencia is working until January, after giving it a full 6 months. However, I have had guarded optimism because I was seeing subtle changes, mainly in the fatigue arena. I had the energy to tackle cleaning my closet on Saturday. Like most women that was a project that should have taken a well person several days. But not one that takes things in moderation I dove in and worked from 11:00am until 10:00pm taking only time to take a dinner break and the usual potty runs. When I went bed on Saturday evening I had the normal aches and pains one gets from strenuous activity,sure it was from bending and lifting all day. At 3:00am I woke up in horriffic pain. It was as though someone was shattering the bones in my hands with the force of a hammer, over and over again. My hands were totally deformed and swollen, with veins popping out . I couldn't bend my fingers. Although my hands were hot to the touch, my finger tips were ice cold, telling me the circulation was stiffled by the inflammation. At any rate, this began a 17 hour episode of nausea, vicodine and extreme fatigue. I couldn't get out of bed or eat and the vicodine gave me a severe headache. About 8:00pm I was beginning to feel a bit better and felt as though I was back to the land of the living. Today the pain and swelling is down although still present. I interpert this to mean that the Orencia must be working, because the pain which was so severe seemed foreign to me. A few months ago the routine of extreme fatigue, nausea from pain and vicodine every 4 hours was a typical day. I have learned lesson from all this that I wanted to pass onto you guys. Even if you are feeling better, take things in moderation. I think by the excessive strain put on my body by the closet project I was undermining and defeating the help the Orencia has begun to provide. Take my painful lesson and file it in the backs of your minds and let the medication you are taking do its job without your interference.
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