Raynaud's Disease Support Group

Raynaud's disease is a condition that affects blood flow to the extremities which include the fingers, toes, nose and ears when exposed to temperature changes or stress. When exposed to cold temperatures, the oxygen supply to the fingertips, toes, and earlobes are reduced and the skin color turn pale or white and become cold and numb. When the oxygen supply is depleted,...

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Muscles & Bones
/ Raynaud's Disease Support Group

Newly Diagnosed..

deleted_user
deleted_user
I just got diagnosed with Raynaud's yesterday. All my dr told me was that this is common with people like me who have connective tissue diseases. He advised me to wear gloves to keep my hands warm and to keep them around 73 degrees. I really don't know anything about this except that it's the reason why my hands get cold/numb and turn blue.
Is there anything I should worry about with Raynaud's? I'm pretty much in the dark about this..
deleted_user
deleted_user
I've had Raynaud's for over 15 years now and I always beware of humidity (especially when its cold), getting my extremities injured because sometimes it takes longer to heal, and also stress, air conditioning, and cigarette smoke. *Not everybody is exactly the same though so with time you'll know what works for you and what doesn't. GOOD LUCK AND HANG IN THERE!
deleted_user
deleted_user
Pascale pretty much said it all. I was diagnosed with Raynaud's about 3 months ago. I have an unusually, I repeate UNUSUALLY severe case of the disease where my Connective Tissue Disease caused such bad inflamation that my fingers were depleted of oxygenated blood for about a month. Now I'm on medication and it seems to be helping a lot. I guess the only thing I can add to what Pascale said was be careful and watch your Raynauds. If you encounter a spasm (discoloration) that lasts for more than a few days, go see your Rummy doctor! I have severe nerve damage and deformed fingers from where the dead tissue had to be removed. All because I didn't know it was serious. I'm not saying this to scare you or anything, almost all Raynaud's cases are vertually harmless. I just want you to be careful so you don't end up like me. If you ever need to talk about Raynauds, or Connective Tissue Diseases, feel free to leave me a message!
deleted_user
deleted_user
Anxiety is another trigger for me and some others.

I was DX when I was 8 years old.
deleted_user
deleted_user
I was diagnosed about 15 yrs ago. Freezing cold hands that would go white and my feet were always like ice. I go to be with socks. It doesn't matter what the weatherm is they stay cold. It's very painful sometimes. I try to keep my hands busy. Knitting, crocheting or folk art painting. I keep them moving. If the pain persist see your doctor. Good luck
deleted_user
deleted_user
SORRY TO HEAR THIS MY DAUGHTER WAS DIAGNOSED RECENTLY. SHE GETS IT HORRIABLY IN HER HANDS AND FEET. KEEP THEM WARM ,(sorry caps) i know things like the freezer isles at stores, the pool, anything cold will set her off , she is a baby so if she gets worked up that sets her off ( i guess its like stress for us!).. just trying to keep it under control is the key.
deleted_user
deleted_user
I too have mctd, along with polymyositis. I have only been dx with Raynaud's for about 6 weeks and on tx for a week. I take norvasc. This helped immensly. I still have to sleep with a hoodie and sweats on, but my hands feel so much better. It's summer now, so we'll see how the winter goes.

I didn't take my medicine until late last night and I went for a run earlier in the evening...that caused an episode. It's so uncomfortable too. It freaks me out when it happens at the gym...it's so hot there! It really sucks when I go from sweating my tushie off to right into the air conditioning...omg! It's weird too, my fingers get numb and turn the most horrid colors! But, otherwise, it doesn't really bother me. It embarrasses me aroung patients if it happens here at work...oh well. Once warmed up, they go back to normal:)
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