Anyone On Tracleer? Were You?
Hi there. I'm back on Tracleer and wanted to know if anyone else is on it. Would you please tell me your experience with it. Thanks!
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I've come on here to look for support from others with PH but this support page seems to have lost all of it's people. If anybody else comes on this page to seek support or just somebody to talk to, send an email to firstname.lastname@example.org and I'll reply as soon as I can, I'd like somebody to talk to also so it would help us both out.
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
It's so hard dealing with pain especially when you don't get any support from the person who your supposed to be closest to. So hard when your trying to deal with pain and that person treats you worse than the pain. Having hard time understanding why. unless you are having a good Day you are treated like crap and they make you feel worthless.