Prednisone for Pulmonary Fibrosis
Tell us about your personal experience with Prednisone as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
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this is my first time posting anything anywhere. I was diagnosed with pf the day before thanksgiving 2016. I am only 41 years old and I have small children. I'm on continuous oxygen and in need of a transplant, although I still have a hard time accepting any of this as true. I am still getting used to functioning around cords and with the pain in my chest. I think what makes this most difficult...
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
It's so hard dealing with pain especially when you don't get any support from the person who your supposed to be closest to. So hard when your trying to deal with pain and that person treats you worse than the pain. Having hard time understanding why. unless you are having a good Day you are treated like crap and they make you feel worthless.