Glad I found an active group to share my troubles. I was diagnosed with a DVT with multiple PE back in March. I've been on Xerolto since then and I feel a lot better since before this all started. Originally my doctor and I thought I had an Asthma problem, I likely still do, and treated it as such. But I got progressively worse with dull leg pain, back pain, shortness of breath and severe fatigue. I'd finally had enough and went to the ER because my leg hurt so bad after work. That was when the diagnosis began after ultrasound determined my DVT of the left leg. Then the Venus Doppler my doctor ordered showed the PEs.
This was a shock and I was emotionally torn up for several weeks after learning the severity of what I have. The whole experience has also been frustrating since the doctors don't know the cause nor seem concerned since I'm stable. IveI been to a pulmonary doctor and vaaculva doctor. The pulmonary doctor ordered a lung test and heart doppler. The vascular doctor told me to stay on the Xeralto and I have an appt booked with a hemotologist in October.
Is this normal course of action for an unprovoked DVT and PE? I've had to kind of put it out of mind and go about my routine, minding not getting a cut, but there is so much unknown. There are also reminders my lungs are still weak like when I laugh hard or clean. My mouth also drys out and it's hard to talk sometimes or a get out of breath from talking. I've read everything from cancer to blood disorders. I'm curious what others have had that lead to their condition. Thanks for your time and any answers you can provide.
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