I was just wondering if anyone was diagnosed with a blood disorder that caused their PE? I was diagnosed August 06 with Antithrombin III Deficiency and aside from my mother I don't know anybody else with it. My mother also has Factor V Leiden and Anticardiolipin Antibody Syndrome. Anyway, I was really lucky that I found out I had it cause it was in April that I had my PE. I started with the horrible chest pains on a Monday. I couldn't sleep lying down it hurt so bad, actually at first I really couldn't sleep at all, but I was putting off going to the Dr cause it was 2 weeks before finals. I went to my campus's health services building where I was diagnosed with walking pneumonia. I had told them about my blood disorder but because I looked so healthy and aside from my breathing problems and the funky feeling of my lung I felt fine. They gave me antibiotics and I left, I went to a formal in pain and also played my trumpet in my band concert in pain (and not very well). The Tuesday following I told them I wasn't feeling any better so they scheduled me for a CT Scan on Friday. By Thursday night I had figured out that I had been right and it was a blood clot. I packed my stuff and brought my boyfriend in with me Friday morning and told them I thought I should go to the hospital, which is, they told me, what they had planned for me as well. I was escorted by my campus police and the whole thing worked out alright. Basically you all know what happened after that, you have all been through the same thing. As miserable as I was that I found out I had a blood disorder back in August my father kept telling me that it was better that I knew about it. I found out he was right. I don't know how long it would have taken them to figure out that I didn't have Pneumonia and that it was a blood clot had I not told them about my disorder. I think that they did an amazing job as just a service offered by my campus and not as my regular Dr. Honestly I can't blame them for thinking it was Pneumonia. It probably isn't very often that a 19 year old Sophomore in college walks into their building with a blood clot of any kind, ha ha. So ya, I was just wondering if anybody else has a blood disorder or if anyone had a similar experience. Also, my DVT was in my abdomen, and I don't smoke and I wasn't on birth control and I never have done either. I was only on the lowest form of hormone they can give me to regulate my period and it has been shown in a study to never be linked to causing a clot of any kind (although it had to have been what did it). Actually, that is another concern for me. I need to get my periods under control. The summer before I had my PE I bled for 64 days straight, and I get heavy periods. I was working 2 jobs at the time and have always had irregular and long lasting periods, so I didn't even realize until the end of the summer that I had it straight from Jun 28th to August 3rd. I was told that if I don't get them under control I will end up with Uterine Cancer, but I can't take hormones unless I want another clot. I was told that even being on Coumadin while taking a hormone is not the best or smartest of ideas. So I guess if anyone has any advice or thoughts on the situation that would be greatly appreciated as well. This is just everything I have been dealing with medically (myself) for the past few years. (My family is a completely different story and will probably end up on a different discussion board) So ya...kinda long discussion post, but I am curious.
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