Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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endometriosis and PE's....

deleted_user
deleted_user
I'm "hijacking" a small thread that was talked about in hopper69's discussion about APS. I'm curious about all the women who were on the birth control to "regulate" their mentrual cycle and if any of you have endometriosis?
I had laproscopic surgery over 12 years ago for endometriosis (my primary problem has been horrible cramping and heavy flow=menorrhagia) The surgeon removed many endometrial lesions in my pelvis, on my bladder, my ovaries, my uterus, etc....the medical records documented that I had stage four endo which I think is the highest.

I'm curious if there might really be so correlation between this and PE's for women (sorry guys!) I was reading an article recently on medline and it was talking about hypercoagulable states in our body (the ability of blood to clot) and it mentioned this.... "other signs of coagulopathy= blood clotting include epistaxis (nosebleeds) and menorrhagia (excessively long and heavy periods) So for "too much info", but I also have large clots during this time, as well.
I might be totally off, but it would be interesting to know if any of you have this medical condition along with your PE or DVT?
deleted_user
deleted_user
thats really interesting. i just found out i have a dermoid cyst on my ovary and just a simple functional one as well and you have dermoids your entire life so possibly all of our girly organs can cause even more grief!
PamelaHope
PamelaHope
Hi Alexandra,

I have Lupus Anticoagulant and I think I read that you have that too??

I do not have endometriosis but a couple of years back I had gyn surgery to remove two small polyps. Both Benign.

However, previous to that I was going to the gyn to complain of heavy periods which is why we found the polyp in the first place. I had the polyp surgery thinking that would end my heavy, clotty periods. It did not. I went back to the gyn and said my periods are still heavy and almost clotty. I am going off thread but I think it should be standsard procedure to test gyn patients who complain of certain menstrual difficulties to test for clotting disorders.

Pam
deleted_user
deleted_user
I had adenomyosis which is endometriosis inside of the uterus. I had a hysterectomy which is what lead to my PE. What I find interesting is that giving birth to two of my children resulted in superficial thrombopehlebitis or blood clots in my superficial veins and then the PE from the removal of my utersu. I have wondered if there is a connection there. I have had other surgeries that did not result in any complications related to blood clots. Just the three things that related to child birth. I don't know how long the adenomyosis was present to be able to find out if it played a part in the clots. It is hard to diagnose unless the uterus is removed and biopsied.
deleted_user
deleted_user
I had my PE after a flight to NYC, but just before the flight and whilst on it I had the worst cramps ever with my period and also a an extra heavy flow. I have always had painful and heavy periods, but I always thought that being on my period and having the cramps were related to the PE - but no-one took note when I mentioned this to the DRs in UK and US. I have to say that when it was my period on Warfarin, I also felt shorter of breath than normal and much more ill - I really believe there is a connection. It is a really interesting topic

I am sure between us on this site we have probably made so many medical discoveries that all we need now is some insightful researchers to carry out some research - anybody out there?????????
deleted_user
deleted_user
This is interesting actually. I don't know if this is relevant - but i was on my period when i was diagnosed with my PEs and it was particularly heavy that month...don't know if there is any connection there!? x
deleted_user
deleted_user
Hello,

I have endometriosis from age 17 and they told me I will never be able to have kids have(two boys) and had 3 laparoscopy's the Dr. put me on birth control for may years and then 3 years ago I broke my leg and 2wk later I was Dx with a massive PE the dr's ware never sore what cause the PE they told me it may have been the combination of all the things. You may be an to something



margaret
deleted_user
deleted_user
I BROKE BY LEFT BIG TOE ANND NEXT TOE ABOUT 3 WEEKS BEFORE MY 2 MASSIVE PE"S WITH LUNG INFARCATION. I HAD AWOLLEN LEG BEFOER THAT SAME ONE BUT MAKES ME WONDER.
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