Are you taking warafin? My PE was on Oct 17, in the hospital for 7days. Nothing wrong in the legs, fell off my horse 2 weeks before the PE and traveled 2 weekends for work. The 2nd set of CT being sent to Mayo clinic, not sure what caused it. What is a catheter ablation? Yeah, I feel scared, still.

hey there, it is such a scary time I know. THe first few weeks are horrible I remember, there are so many thoughts that must be racing through your mind, why me, what happens now, etc, etc, etc. The pains should get easier over time, mine was two months ago and I still get the odd twinge here and there, but it does get easier. But yeah I completely understand where you're coming from, I just wanted to stay wrapped up in cotton wool and was too scared to leave the house alone til about two weeks ago. It will get easier for you, but in the mean time talk to us lot. If you are on warfarin/coumadin the chances of it happening while on them are next to nil. take care and msg me if you wanna chat or have any questions x

A catheter albation is where they go in through your groin on both sides and insert catheters in your veins where they enter your heart, then they map your heart, so while they do that, they will also find out where the short circut is coming from that made my heart race to over 200bpm, called tachycardia, they used cryo to remove the tissue. It's a pretty common procedure and I was awake the whole time, it was very weird.

I don't have advice, I just wanted to say that I can totally relate. It will be 2 weeks tomorrow, and this is the first time they've let me go more than 2 days without an INR -- I'm supposed to go a week. And, I'm nearing a panic. So, I have an appt. with the gyn. tomorrow, same office, and I think I'm just going to ask for an INR. I have any pain and I think what if it's a clot, esp. in my legs, since I never felt them there anyway, what if my INR has slipped and I have a clot, and I just don't know it. Gosh, I sound terrible, maybe it's not helpful? It helps me to know that we are all going thru the same thing.

Hey, Becky, you sound like me, being worried about another one, from what I've read and what the doctors have told me that once you start the blood thinners you should be fine. It'll be 3 weeks for me Friday, I go for a INR in the morning and it was my first time going a week, I was nervous too, but I'm excited to see where it is in the morning. I did testing today for any blood disorders, so we'll see when that comes back, but they really don't know why I had a PE, except that it could be related to my ablation I had two days prior. Which is unusual, but there's always a chance and that would be me. Hang in there, I know I am, I have to...I have too many people around me that love me and this is only making me stronger.

Hi - I was in your shoes 3.5 months ago. It will and does get better. Everything you ladies are saying, I went through. It will get better, you just need time... You'll notice every ache, pain and problem in your body for the next few weeks and then you'll slowly start knowing things and realizing that you'll be ok. You made it thru the scariest part - the clot traveling thru your heart and into your lungs. You're 2 weeks beyond that? It does get better.

I will say this much, it's made me appreciate life more and I don't work as hard and I try not to nag my husband so much cuz it's not worth it anymore.

Not advice, but today was my 2nd day back, 4 hour day, the pain came back in the same place at end of work, of course not as bad but got my attention, hurt at a few breaths, but not as bad as the night it happened. I can feel it ,

As long as you are on Coumadin and are taking reasonable precautions (taking walks during flights, etc.) you will be fine!

I understand completely because I am still scared, 2 1/2 years later. But I am off Coumadin and feel like there is not much within my control as prevention. I know it helps that I am off the pill now, but I constantly wonder. Has anyone else been off Coumadin for a while? Has anyone had a 2nd PE?

Maddy you should post that as a new discussion topic because I would be curious about that question as well.

Renee, I know how you feel. I had breast
reduction surgery on May 27th and then developed a DVT a few days later. My plastic
surgeon said that this happened in less than 1% of patients, actually he said he had never had any of his patients have a clot after breast reduction. Then a week later, had two
small PE in lungs. My Dr. said are not life
threatening. I also have been worried and
scared, but I have to remember that I have
survived this and am in stable condition.
It sounds like you are getting good reports from your Dr's which is a very good sign.
I think that your clot must have been small also so you are probably ok now. Just try to relax. I know several people that survived PE's and are fine now. You know I look at it this way. It is probably more likely that I could die from a car wreck than my PE so life is uncertain and we can't bother worrying about every breath we take.
I know God is in charge and has already taken care of me, so I am thankful to him for that. I do wish you well and will pray that you continue your recovery which I am sure you will. Your situation or mine doesn't sound as serious as some of the ones
I have read. Just focus everyday on this thought "I am well and strong." Kathy