I had a lumbar puncture on 1/14/11 and my opening pressure was 11, which means my acetazolomide is doing it's job. What I don't understand is why I am having headaches daily still, some of them are still pretty bad, but mostly the pain is tolerable but always there. I asked my Neuro this but he said he was sending some of the fluid for testing. He is going to call me when he gets the tests back. Also the last time he looked at my eyes which was about 3 wks ago I still have paps. I don't understand why if my pressure is low am I still have ha's even though they aren't horrible every day like they where. Has anyone else had this problem? Also do side effects from acetazolomide ever go away? I have been on this since 8/2010 and still get the pins and needles feeling in my toes and heels, and my nose and mouth feel like they have a spider web stuck to them. Weird feeling.
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