I am new to the group and don't really know where to start. I was diagnosed almost two years ago. I have had numerous lumbar puntures and have had many complications due to these. Recently, I was told I needed the optic nerve fenestration sugery. I changed neurologists, thankfully, and found out I don't need it. The pressure is on my optic nerves, but not as badly as it is on my brain and spinal cord. My new neuro sugested that I have the lumbar shunt. I am scared to death. I know there are good stories and bad. I am asking for all the advice I can get because I am trying to chicken out. I have been weighing my options as to whether I should just keep getting a spinal tap every month or go ahead with the lp shunt. Please, everyone who has had this procedure done, give me some input....good or bad. I want to know all the ins and outs associated with this. Thanks in advance.
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