I just found out that I have psuedotumor cerebri almost a month ago it has been really hard on me and my family. The doc put me on Diamox only to find out that im highly allergic to it and cant take it. so we have had tried different meds and doing my 3rd spinal tap soon to see if any of my new meds are working. My eyes are no better either the are still swollen and they are talking about surgery to release my extra fluida in my optical nerves so i dont go blind. Im scared out of my mind and unfortunately for me the way i handle things is not to handle them so i havent even been able to cry or morn because of my illness and because of that it leaking into my life. I dont know what to do or how to handle the emotional part of this illness. Ive never even cried or even get mad about this illness!!
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