hey everyone i dunno if u remember me i was the one from hawaii n didnt know much about ptc. well im back... im in new mexico now had a shunt put in. lost my vision n recoverin just fine... when i got to new mexico i got really sick really bad really fast.for 2 weeks i was not able to eat or drink i had really bad head ache, throwing up every 5 mins, blacking out... i went to 2 differ hospitals n no one would do a spinal tap. theyd do a ct scan and go by that.. people pls you know ur body better then any dr. pls speak up.. 3rd time is a charm... i went back to university of new mexico er. now lemme tell you the wait in these er are any where from 10-15 hours.. and i did this 3x. this time i told myself i wasnt going no till they do the spinal tap. a neurologist student came to check me out. If wasnt for her I would be blind today.She made her call and paged a jr neurologist to do the spinal tap. Lemme tell you my spinal tap was great.. I felt no pain but cried happy tears. My pressure was dangerously high so I got admitted to neurology icu. This is 1 nurse to 1 patient being watched 247. I woke up the next day not being able to see well.. everything was blurry. my eyes went from 20/20 to blind within 4 days. After having me on antibiotics thru iv for 3 days no improvments. they did a field test for my eyes and it just got worst. they even did another spinal tap that was hell. only 1 thing left to do.. Have a shunt. So i did the surgery. its been a month now and im getting my vision back. no head ache, no wooshing sounds in my ears.. no diamox... the only thing im suffering from is where they put the tube in my stomach. the area is swollen like a grape fruit.. doesnt hurt.. just swollen. other then that im great... the nurses are awsome at university of new mexico and so are the dr. if anyone needs a great neurologist in my area feel free to ask me i'll give you their number.. also the student dr are great too they care so much and really want to help you.
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