Hi folks - it's my daughter who has ptc. The headaches started in April 2008, and she was admitted to hospital for a month in July 2008. Her LP pressure was as high as 56 at one time - literally off the scale. Since then, she has been on 750mg Diamox 4 times a day. We've had a real problem getting doctors to actually do a treatment. We have finally seen a neurosurgeon who told us that it was definitely time for a surgical intervention, and she is to be scheduled for a vp shunt within the next few weeks. I am absolutely terrified...the poor kid was half way through her first year at university, and her life has literally been put on hold for a year and a half. She tries to sleep all day because the headaches are so bad.....I don't even think she could be a part of this group because her eyes are getting bad again. (the first time, both optic nerves were fuzzy - papleomia(??-sp). Anyhow, anybody out there ever had a VP Shunt>>
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