I was diagnosed with PTC at the age of 13 in 2008 where I had my first lumbar puncture. I had double vision and debilitating headaches. My eye even began to turn inwards. I was told to lose weight but never put on any medication. I did lose weight for a while and my symptoms went away and my eyes went back to normal. Unfortunately, my weight has always been a lifelong struggle and I ended up gaining back quite a bit of weight and had another episode of PTC in 2012 at 17 where I had another lumbar puncture. This time I was put on diamox, eventually then topamax. I was also prescribed phentermine to help aid my weight loss. I eventually stopped seeing a neurologist do to some financial issues my family was having at the time and we just stopped making follow up appointments since my symptoms had gone away. I understand this was a mistake and I should never have gone off my meds. My symptoms eventually disappeared and for five years I haven't had any problems until a few days ago. My migraines are back and I'm beginning to have some vision loss in my left eye. I'm trying to make an appointment to see a neurologist but I'm wondering if it's to the point now where I need an actual lumbar puncture. Can the pressure be relieved through medication and weight loss alone? How much weight loss is sufficient enough to relieve symptoms. I'm 5'5'' and weigh 275 lbs. I recently gained about 15 lbs which is congruent with when my symptoms began to start again. I know I'm obese and desperately need to lose weight. I'm just scared and don't have a very good support my system and need a place to discuss this with people who understand.
Hi everyone! First of all I am so happy I found this group. My family and friends don’t understand what I go through and my fears with having papilledema and IIH. It all started back in February time frame when I started hearing whooshing in my ears. I chalked it up to allergies. Fast forwayd to end of March, I had a miscarriage and then started hearing more whooshing in my ears, gray haze...
Hello everyone I am trying to get some advice on a test that I will be getting very nervous never had a lumbar puncture test my neurologist is ordering this test because I have been having pressure in my head for months have anyone had to get this test I would like some feedback I would really appreciate it