I was diagnosed with PTC at the age of 13 in 2008 where I had my first lumbar puncture. I had double vision and debilitating headaches. My eye even began to turn inwards. I was told to lose weight but never put on any medication. I did lose weight for a while and my symptoms went away and my eyes went back to normal. Unfortunately, my weight has always been a lifelong struggle and I ended up gaining back quite a bit of weight and had another episode of PTC in 2012 at 17 where I had another lumbar puncture. This time I was put on diamox, eventually then topamax. I was also prescribed phentermine to help aid my weight loss. I eventually stopped seeing a neurologist do to some financial issues my family was having at the time and we just stopped making follow up appointments since my symptoms had gone away. I understand this was a mistake and I should never have gone off my meds. My symptoms eventually disappeared and for five years I haven't had any problems until a few days ago. My migraines are back and I'm beginning to have some vision loss in my left eye. I'm trying to make an appointment to see a neurologist but I'm wondering if it's to the point now where I need an actual lumbar puncture. Can the pressure be relieved through medication and weight loss alone? How much weight loss is sufficient enough to relieve symptoms. I'm 5'5'' and weigh 275 lbs. I recently gained about 15 lbs which is congruent with when my symptoms began to start again. I know I'm obese and desperately need to lose weight. I'm just scared and don't have a very good support my system and need a place to discuss this with people who understand.
Happy Humpday !I would love input on anything that has helped you sleep better ! I know that's a tough request ! But, we get desperate for sleep and I sure am !!Blessings and warm gentle hug to you all !!!
I would love some guidance from anyone who has ideas to help my fibro pain. To outline my history, my nerve pain actually started after I was diagnosed with endometriosis in my early 20s. I had lower abdominal pain along with chronic joint pain for over 10 years. In 2015 I had a hysterectomy and no longer have abdominal pain which is amazing!! But I still have super bad chronic joint pain. ...