When I was 12, I was diagnosed with chiari malformation, and had a bone decompression and c1 laminectomy. This stopped the horrible headaches and vomiting and I was fine for 5 years. I had gotten overweight during this time, and starting getting dizzy and lightheaded all the time. I went to a neurosurgeon, and he told me my previous surgeon had not sucessfully closed a hole, and I was leaking csf fluid. I had surgery to fix this, a pseudo meningal seal. A couple days later, my eyes crossed and I went to the ER-my intracranial pressure went very high, and they did a spinal tap to drain fluid. After a while, they saw it would not go down on it's own, and placed a ventrical shunt. About 2 weeks after this surgery, I started developing symptoms that have not gone away to this day. My arms felt funny and weak, and then it spread to my legs. I feel as if I can't even feel myself there sometimes, like extreme lightheadedness where you feel out of your body. I have never felt normal since, and feel constant weakness and lightheadedness that is hard to describe. I also have left ear vertigo. I did later have my shunt cleaned out, which helped nothing. About 1 and a half years later, my shunt was removed because my pressure was normal-even on the low side. I have never needed it again, and I am wondering if I ever did need the shunt, or if the presurre would have gone down on it's own. I am wondering if anyone can tell what these symptoms are from? I am wondering if something went wrong in the surgery. I have tried for years to figure this out because it's 24/7, but no CT scan or MRI shows anything abnormal that they can obviously see and it is VERY frustrating. Thank you.
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