I'm newly diagnosed with IH. Ive been feeling constant very high pressure in my head and often numbness in parts of my face and jaw. Ive become very sensitive to the weight of anything I pick up...if hold anything heavier than a glass of water I can feel my pressure go up, or if I strain in any way.
Yesterday, I strained trying to close a door that was stuck. Immediately afterwards a trickle of thin clear fluid came out of my left nostril. Was it mucus or CSF...I dont know for sure, but Ive had a dry nose lately and the timing of that trickle was suspect.
Today, the pressure in my head is much less than before, but not totally gone.
I'm wondering if the elevated pressure from straining forced some CSF fluid out of my sinus cavity through my nose. In doing so, it aleviated my pressure somewhat.
Has anyone else had this happen? Ive read about CSF Rhinorrea but it sounds like they tend to leak a LOT through their nose. Has anyone else had just a small trickle from straining and then it stopped? And if so, so do you mostly continue to have high pressure?
I was diagnosed with PTC 8 years ago. I have been doing farely well. I was getting spinal taps regularly when I was first diagnosed. Since then I have not had a spinal tap in 3 years and have been on and off of my medication due to the medical miracles of CBD oil. Lately not even my CBD oil has been working. My neurologist states that I have papilledema in both eyes and my head has been hurting...
Hi! Glad to have found this group. I have been looking to find other people with PTC to see if my experience is normal or not. I was diagnosed in Sept 2017 after visual disturbances, color changes, and grayouts made me go to an ophthalmologist. I also had daily headaches, fatigue, nausea and malaise but didn't think they were related. After discovering swollen optic nerves and an LP it was...